Items where authors include "Fraser, Lorna Katharine"

Article

Fisher, Victoria orcid.org/0000-0002-1497-1241, Atkin, Karl Michael orcid.org/0000-0003-1070-8670 and Fraser, Lorna Katharine orcid.org/0000-0002-1360-4191 (2025) A mixed methods exploration of the health and caregiving experiences of fathers of children with a life-limiting condition. Palliative Medicine. ISSN 0269-2163

McLorie, Emma Victoria orcid.org/0000-0003-2043-7069, Hackett, Julia orcid.org/0000-0003-1720-6665, Barrett, Laura orcid.org/0000-0002-0163-764X et al. (16 more authors) (2025) Healthcare professionals' perspectives of providing end-of-life care for infants, children and young people in acute settings:A multi-site qualitative study. Palliative Medicine. 2692163251320204. ISSN 0269-2163

Holder, Pru, Page, Bethan, Hackett, Julia orcid.org/0000-0003-1720-6665 et al. (2 more authors) (2024) Patient and Public Involvement Work With Parents of Children With Life-Limiting Conditions and Bereaved Parents:A Rapid Systematic Review. Health Expectations. ISSN 1369-7625

Bedendo, Andre orcid.org/0000-0001-9554-6564, Papworth, Andrew John orcid.org/0000-0002-3244-2634, Beresford, Bryony Anne orcid.org/0000-0003-0716-2902 et al. (15 more authors) (2024) End of life care in paediatric settings: UK national survey. BMJ Supportive & Palliative Care. ISSN 2045-4368

Barrett, Laura Margaret Alice orcid.org/0000-0002-0163-764X, Hackett, Julia orcid.org/0000-0003-1720-6665, Taylor, Jo orcid.org/0000-0001-5898-0900 et al. (3 more authors) (2024) Evaluating parent and public involvement activities within a paediatric palliative care research centre: Route map to impactful and meaningful engagement. Palliative Medicine. ISSN 0269-2163

Abbott, Jasmin, Fraser, Lorna Katharine and Jarvis, Stuart William orcid.org/0000-0001-8447-0306 (2024) Inequalities in emergency care use across transition from paediatric to adult care:a retrospective cohort study of young people with chronic kidney disease in England. European journal of pediatrics. ISSN 1432-1076

Kammin, Victoria, Fraser, Lorna Katharine, Flemming, Kate orcid.org/0000-0002-0795-8516 et al. (1 more author) (2024) Experiences of music therapy in paediatric palliative care from multiple stakeholder perspectives: A systematic review and qualitative evidence synthesis. Palliative Medicine. pp. 364-378. ISSN 0269-2163

Papworth, Andrew John orcid.org/0000-0002-3244-2634, Bedendo, Andre orcid.org/0000-0001-9554-6564, Taylor, Jo orcid.org/0000-0001-5898-0900 et al. (4 more authors) (2023) A new scale assessing the stressors and rewards of children’s hospice work. BMC Palliative Care. 163. ISSN 1472-684X

McLorie, Emma Victoria orcid.org/0000-0003-2043-7069, Hackett, Julia orcid.org/0000-0003-1720-6665 and Fraser, Lorna Katharine (2023) Understanding parents’ experiences of care for children with medical complexity in England::a qualitative study. BMJ Paediatrics Open. e002057. ISSN 2399-9772

Oluyase, Adejoke Obirenjeyi, Bajwah, Sabrina, Sleeman, Katherine et al. (10 more authors) (2023) Symptom management in people dying with COVID-19:multinational observational study (CovPall). BMJ Supportive & Palliative Care. pp. 439-447. ISSN 2045-4368

Barrett, Laura Margaret Alice orcid.org/0000-0002-0163-764X, Fraser, Lorna Katharine orcid.org/0000-0002-1360-4191, Noyes, Jane et al. (2 more authors) (2023) Understanding parent experiences of end-of-life care for children: a systematic review and qualitative evidence synthesis. Palliative Medicine. ISSN 0269-2163

Barker, Mary, Beresford, Bryony Anne orcid.org/0000-0003-0716-2902 and Fraser, Lorna Katharine orcid.org/0000-0002-1360-4191 (2022) Incidence of Anxiety and Depression in Children and Young People with Life-Limiting Conditions. Pediatric Research. ISSN 1530-0447

Walshe, Catherine, Garner, Ian, Dunleavy, Lesley et al. (11 more authors) (2022) Prohibit, protect or adapt?:The changing role of volunteers in palliative and hospice care services during the COVID-19 pandemic. A multinational survey (CovPall). International Journal of Health Policy and Management. 2146–2154. ISSN 2322-5939

Fisher, Victoria orcid.org/0000-0002-1497-1241, Atkin, Karl Michael orcid.org/0000-0003-1070-8670 and Fraser, Lorna Katharine orcid.org/0000-0002-1360-4191 (2022) The health of mothers of children with a life-limiting condition:a qualitative interview study. Palliative Medicine. pp. 1418-1425. ISSN 0269-2163

Fraser, Lorna Katharine orcid.org/0000-0002-1360-4191, Gibson-Smith, Deborah orcid.org/0000-0002-7552-500X, Jarvis, Stuart William orcid.org/0000-0001-8447-0306 et al. (5 more authors) (2022) Polypharmacy in children and young people with life-limiting conditions from 2000 to 2015:A Repeated Cross-sectional Study in England. Journal of pain and symptom management. 213-221.e1. ISSN 0885-3924

Mayland, Catriona, Sunderland, Katy, Cooper, Matthew et al. (8 more authors) (2022) Measuring quality of dying, death and end-of-life care for children and young people:a scoping review of available tools. Palliative Medicine. pp. 1186-1206. ISSN 0269-2163

Coombes, L, Braybrook, Debbie, Roach, Anna et al. (10 more authors) (2022) Achieving child-centred care for children and young people with life-limiting and life-threatening conditions:a qualitative interview study. European journal of pediatrics. ISSN 1432-1076

Scott, Hannah, Coombes, L, Braybrook, Debbie et al. (11 more authors) (2022) COVID-19:impact on pediatric palliative care. Journal of pain and symptom management. E1-E5. ISSN 0885-3924

Higginson, Irene, Hocaoglu, Mevhibe, Fraser, Lorna Katharine orcid.org/0000-0002-1360-4191 et al. (10 more authors) (2022) Symptom control and survival for people severely ill with COVID-19:a multicentre cohort study. Journal of pain and symptom management. ISSN 0885-3924

Bradshaw, Andy, Dunleavy, Lesley, Garner, Ian et al. (11 more authors) (2022) Experiences of staff providing specialist palliative care during COVID-19:A multiple qualitative case study. Journal of the Royal Society of Medicine. pp. 220-230. ISSN 1758-1095

Horridge, K, Tinkler, Rory, Harvey, Carl et al. (3 more authors) (2022) MRICS categorisation and emergency hospital admissions for children with cerebral palsy:a longitudinal, population-based study. Developmental Medicine and Child Neurology. pp. 734-742. ISSN 1469-8749

Jarvis, Stuart William orcid.org/0000-0001-8447-0306, Flemming, Kate orcid.org/0000-0002-0795-8516, Richardson, Gerry orcid.org/0000-0002-2360-4566 et al. (1 more author) (2022) Adult healthcare is associated with more emergency healthcare for young people with life-limiting conditions. Pediatric Research. ISSN 1530-0447

Harwood, Rachel, Yan, Helen, Talawila De Camara, Nishanthi et al. (13 more authors) (2022) Which children and young people are at higher risk of severe disease and death after hospitalisation with SARS-CoV-2 infection in children and young people:a systematic review and individual patient meta-analysis. EClinicalMedicine. 101287. ISSN 2589-5370

Smith, Clare, Odd, David, Harwood, Rachel et al. (12 more authors) (2022) Deaths in Children and Young People in England following SARS-CoV-2 infection during the first pandemic year. Nature Medicine. 185–192. ISSN 1078-8956

Bayly, Joanne, Bradshaw, Andy, Fettes, Lucy et al. (15 more authors) (2021) Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services:An analysis of the CovPall-Rehab survey data. Palliative Medicine. pp. 319-331. ISSN 0269-2163

Sleeman, Katherine, Cripps, Rachel, Murtagh, Fliss E M et al. (10 more authors) (2021) Change in activity of palliative care services during Covid-19 pandemic:a multi-national survey (CovPall). Journal of Palliative Medicine. ISSN 1557-7740

Ward, Joseph, Harwood, Rachel, Smith, Clare et al. (12 more authors) (2021) Risk factors for PICU admission and death amongst children and young people hospitalized with COVID-19 and PIMS-TS in England durng the first pandemic year. Nature Medicine. pp. 193-200. ISSN 1078-8956

Jarvis, Stuart William orcid.org/0000-0001-8447-0306, Roberts, Daniel, Flemming, Kate orcid.org/0000-0002-0795-8516 et al. (2 more authors) (2021) Transition of children with life-limiting conditions to adult care and healthcare use:a systematic review. Pediatric Research. 1120–1131. ISSN 1530-0447

Jarvis, Stuart William orcid.org/0000-0001-8447-0306, Richardson, Gerry orcid.org/0000-0002-2360-4566, Flemming, Kate orcid.org/0000-0002-0795-8516 et al. (1 more author) (2021) Estimation of age of transition from children's to adult healthcare for young people with long term conditions using linked routinely collected healthcare data. International Journal of Population Data Science. 20. ISSN 2399-4908

Hinde, Sebastian orcid.org/0000-0002-7117-4142, Weatherly, Helen Louise Ann orcid.org/0000-0002-9117-6452, Walker, Gabriella et al. (1 more author) (2021) What does economic evaluation mean in the context of children at the end of their life? International Journal of Environmental Research and Public Health (IJERPH). 11562. ISSN 1660-4601

Liossi, Christina, Greenfield, Katie, Schoth, Daniel Eric et al. (8 more authors) (2021) A systematic review of measures of breakthrough pain and their psychometric properties (Journal of Pain and Symptom Management). Journal of pain and symptom management. pp. 1041-1064. ISSN 0885-3924

Bergstraesser, Eva, Thienprayoon, Rachel, Brook, Lynda et al. (9 more authors) (2021) Top ten tips palliative care clinicians should know about prognostication in children. Journal of Palliative Medicine. pp. 1725-1731. ISSN 1557-7740

Fraser, Lorna Katharine orcid.org/0000-0002-1360-4191, Murtagh, Fliss E M, Aldridge, Jan et al. (3 more authors) (2021) Health of mothers of children with a life-limiting condition:a comparative cohort study. Archives of Disease in Childhood. pp. 987-993. ISSN 1468-2044

Bajwah, Sabrina, Koffman, Jonathan, Hussain, Jamilla Akhter et al. (13 more authors) (2021) Specialist palliative care services response to ethnic minority groups with COVID-19:equal but inequitable—an observational study. BMJ Supportive & Palliative Care. ISSN 2045-4368

Ziegler, Lucy and Fraser, Lorna Katharine orcid.org/0000-0002-1360-4191 (2021) Palliative care for teenagers and young adults - the need for more evidence. Palliative Medicine. ISSN 0269-2163

Maddison, Jane Ridley orcid.org/0000-0002-7963-211X, Taylor, Jo orcid.org/0000-0001-5898-0900, O'Neill, Mark et al. (6 more authors) (2021) Outcomes for gastrostomy‐fed children and their parents:qualitative findings from the ‘Your Tube’ study. Developmental Medicine and Child Neurology. pp. 1099-1106. ISSN 1469-8749

Bradshaw, Andy, Dunleavy, Lesley, Walshe, Catherine et al. (10 more authors) (2021) Understanding and addressing challenges for Advance Care Planning in the COVid-19 pandemic:An analysis of the UK CovPall survey data from specialist palliative care services. Palliative Medicine. 1225–1237. ISSN 0269-2163

Coombes, L, Bristowe, Katherine, Ellis-Smith, C et al. (6 more authors) (2021) Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality. Quality of life research. pp. 1830-1832. ISSN 1573-2649

Fisher, Victoria orcid.org/0000-0002-1497-1241, Fraser, Lorna Katharine orcid.org/0000-0002-1360-4191 and Taylor, Jo orcid.org/0000-0001-5898-0900 (2021) Experiences of fathers of children with a life-limiting condition:a systematic review and qualitative synthesis. BMJ Supportive & Palliative Care. pp. 15-26. ISSN 2045-4368

Dunleavy, Lesley, Preston, Nancy, Bajwah, Sabrina et al. (10 more authors) (2021) ‘Necessity is the mother of invention’:Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall). Palliative Medicine. pp. 814-829. ISSN 0269-2163

Oluyase, Adejoke Obirenjeyi, Hocaoglu, Mevhibe, Cripps, R et al. (10 more authors) (2021) The challenges of caring for people dying from COVID-19:a multinational, observational study (CovPall). Journal of pain and symptom management. ISSN 0885-3924

Papworth, Andrew John orcid.org/0000-0002-3244-2634, Fraser, Lorna Katharine orcid.org/0000-0002-1360-4191 and Taylor, Jo orcid.org/0000-0001-5898-0900 (2021) Development of a managed clinical network for children's palliative care - a qualitative evaluation. BMC Palliative Care. ISSN 1472-684X

Gibson-Smith, Deborah orcid.org/0000-0002-7552-500X, Jarvis, Stuart William orcid.org/0000-0001-8447-0306 and Fraser, Lorna Katharine orcid.org/0000-0002-1360-4191 (2020) Place of death of children and young adults with a Life Limiting Condition in England:A retrospective cohort study. Archives of Disease in Childhood. ISSN 1468-2044

Fraser, Lorna Katharine orcid.org/0000-0002-1360-4191, Gibson-Smith, Deborah orcid.org/0000-0002-7552-500X, Jarvis, Stuart William orcid.org/0000-0001-8447-0306 et al. (2 more authors) (2020) Estimating the current and future prevalence of life-limiting conditions in children in England. Palliative Medicine. ISSN 0269-2163 (In Press)

Harris, Nicky, Noyes, Jane, Fraser, Lorna Katharine orcid.org/0000-0002-1360-4191 et al. (6 more authors) (2020) Managing and sharing research data in children's palliative care::risks, benefits, and imponderables. Journal of Advanced Nursing. pp. 1-4. ISSN 0309-2402

Hasan, Taimoor, Ainscough, Thomas Stephen orcid.org/0000-0001-5934-819X, West, Jane et al. (1 more author) (2020) Health care utilization in overweight an obese children::A systematic review and meta-analysis. BMJ Open. ISSN 2044-6055 (In Press)

Fraser, Lorna Katharine orcid.org/0000-0002-1360-4191, Murtagh, Fliss E M, Sheldon, Trevor Andrew orcid.org/0000-0002-7479-5913 et al. (2 more authors) (2020) The health of mothers of children with a life-limiting condition:a protocol for comparative cohort study using the Clinical Practice Research Datalink. BMJ Open. ISSN 2044-6055 (In Press)

Taylor, Jo orcid.org/0000-0001-5898-0900, Booth, Alison orcid.org/0000-0001-7138-6295, Beresford, Bryony Anne orcid.org/0000-0003-0716-2902 et al. (3 more authors) (2020) Specialist paediatric palliative care for children and young people with cancer:A mixed methods systematic review. Palliative Medicine. ISSN 0269-2163

Ling, Julie, Bluebond-Langner, Myra and Fraser, Lorna Katharine orcid.org/0000-0002-1360-4191 (2020) Recent Advances in European Paediatric Palliative Care. Medical Sciences. ISSN 2076-3271 (In Press)

Greenfield, Katie, Holley, Simone, Schoth, Daniel Eric et al. (11 more authors) (2020) A protocol for a systematic review and meta-analysis to identify measures of breakthrough pain and evaluate their psychometric properties. BMJ Open. e035541. ISSN 2044-6055

Jarvis, Stuart William orcid.org/0000-0001-8447-0306, Parslow, Roger, Hewitt, Catherine Elizabeth orcid.org/0000-0002-0415-3536 et al. (2 more authors) (2020) GPs’ role in caring for children and young people with life limiting conditions – a retrospective cohort study. British Journal of General Practice. pp. 1-9. ISSN 1478-5242

Barker, Mary Moffett, Bland, John Martin orcid.org/0000-0002-9525-5334 and Fraser, Lorna Katharine orcid.org/0000-0002-1360-4191 (2019) Anxiety and Depression Prevalence in Children, Adolescents, and Young Adults With Life-Limiting Conditions—Reply. JAMA pediatrics. pp. 208-209. ISSN 2168-6211

Taylor, Johanna orcid.org/0000-0001-5898-0900, O'Neill, Mark, Maddison, Jane Ridley orcid.org/0000-0002-7963-211X et al. (7 more authors) (2019) ‘YourTube’ The Role of Different Diets in Children who are Gastrostomy Fed:protocol for a mixed methods exploratory sequential study. BMJ Open. ISSN 2044-6055

Ainscough, Thomas Stephen orcid.org/0000-0001-5934-819X, Fraser, Lorna Katharine orcid.org/0000-0002-1360-4191, Taylor, Johanna orcid.org/0000-0001-5898-0900 et al. (2 more authors) (2019) The effectiveness of bereavement support interventions for parents of infants and children who die: A systematic review. BMJ Supportive & Palliative Care. ISSN 2045-4368

Han, Lu orcid.org/0000-0001-7198-3380, Clegg, A, Doran, Timothy orcid.org/0000-0001-7857-3704 et al. (1 more author) (2019) The impact of frailty on healthcare resource use:a longitudinal analysis using the Clinical Practice Research datalink in England. Age and Ageing. ISSN 0002-0729

Barker, Mary Moffett, Beresford, Bryony Anne orcid.org/0000-0003-0716-2902, Bland, John Martin orcid.org/0000-0002-9525-5334 et al. (1 more author) (2019) Prevalence and incidence of anxiety and depression among children, adolescents and young adults with life-limiting conditions:a systematic review and meta-analysis. JAMA pediatrics. pp. 835-844. ISSN 2168-6211

Robinson, Tomos, Brown, Heather, Norman, Paul et al. (3 more authors) (2019) The impact of New Labour’s English health inequalities strategy on geographical inequalities in infant mortality:a time trend analysis. Journal of Epidemiology & Community Health. pp. 564-568. ISSN 1470-2738

Oostendorp, Linda, Rajapakse, Dilini, Kelly, Paula et al. (4 more authors) (2018) Documentation of breakthrough pain in narrative clinical records of children with life-limiting conditions:feasibility of a retrospective review. Journal of child health care. ISSN 1367-4935

Booth, Alison Margaret orcid.org/0000-0001-7138-6295, Maddison, Jane Ridley orcid.org/0000-0002-7963-211X, Wright, Kath et al. (2 more authors) (2018) Research prioritisation exercises related to the care of children and young people with life-limiting conditions, their parents, and all those who care for them:a systematic scoping review. Palliative Medicine. pp. 1552-1566. ISSN 0269-2163

Jarvis, Stuart William orcid.org/0000-0001-8447-0306, Livingston, John, Childs, Anne-Marie et al. (1 more author) (2018) Outpatient appointment non‐attendance and unplanned health care for children and young people with neurological conditions: a retrospective cohort study. Developmental Medicine and Child Neurology. pp. 1-7. ISSN 1469-8749

Jarvis, Stuart William orcid.org/0000-0001-8447-0306, Livingston, John, Childs, Anne-Marie et al. (1 more author) (2018) The impact of neurological disorders on healthcare for children and young people. International Journal for Population Data Science.

Fraser, Lorna Katharine orcid.org/0000-0002-1360-4191, Fleming, Sarah and Parslow, Roger (2018) Changing Place of Death in Children who died after discharge from Paediatric Intensive Care Units:a national, data linkage study. Palliative Medicine. pp. 337-346. ISSN 0269-2163

Smith, Lesley, Norman, Paul, Kapetanstrataki, Melpo et al. (4 more authors) (2017) Comparison of ethnic group classification using naming analysis and routinely collected data: application to cancer incidence trends in children and young people. BMJ Open. ISSN 2044-6055

Jarvis, Stuart William orcid.org/0000-0001-8447-0306 and Fraser, Lorna Katharine orcid.org/0000-0002-1360-4191 (2017) Comparing routine inpatient data and death records as a means of identifying children and young people with life limiting conditions. Palliative Medicine. ISSN 0269-2163

Fraser, Lorna Katharine orcid.org/0000-0002-1360-4191 and Parslow, Roger (2017) Children with Life-Limiting Conditions in Paediatric Intensive Care Units::a national cohort, data linkage study. Archives of Disease in Childhood. pp. 1-9. ISSN 1468-2044

Aldridge, Jan, Shimmon, Karen, Miller, Mike et al. (2 more authors) (2017) "I can't tell my child they are dying":Helping Parents Have Conversations With Their Child. Archives of Disease in Childhood. ISSN 1468-2044

Jarvis, Stuart William orcid.org/0000-0001-8447-0306, Parslow, Roger C, Carragher, Pat et al. (2 more authors) (2016) How many Children and Young People with Life Limiting Conditions are clinically unstable?:a National data linkage study. Archives of Disease in Childhood. ISSN 1468-2044

Monograph

Fraser, Lorna Katharine orcid.org/0000-0002-1360-4191, Bedendo, Andre orcid.org/0000-0001-9554-6564 and Jarvis, Stuart William orcid.org/0000-0001-8447-0306 (2023) Children with a life-limiting or life-threatening condition in Wales::Trends in prevalence and complexity. Research Report. University of York

Fraser, Lorna Katharine orcid.org/0000-0002-1360-4191, Jarvis, Stuart William orcid.org/0000-0001-8447-0306, Moran, Nicola Elizabeth orcid.org/0000-0002-6219-0394 et al. (3 more authors) (2015) Children in Scotland Requiring Palliative Care:identifying numbers and needs (The ChiSP Study). Research Report. University of York