Chatikobo, T. orcid.org/0000-0003-2936-7415, Griffiths, F. orcid.org/0000-0002-4173-1438, Hayden, N. orcid.org/0000-0003-1104-3885 et al. (7 more authors) (2026) Open science, health data and epistemic harms: a multidisciplinary reflection. Data Science Journal, 25. 15. ISSN: 1683-1470
Abstract
Open Science (OS) promises to democratise knowledge and reduce epistemic inequalities. However, a critical analysis reveals the potential of OS to amplify structural vulnerabilities, especially for people and communities already at the margins. With a particular focus on health data, this interdisciplinary essay examines how OS infrastructures perpetuate epistemic harms through the dominance of Eurocentric knowledge norms, legal regimes and corporate capture. Amidst the rapidly evolving health and data landscape, realising the social justice potential of OS, especially in healthcare, demands moving beyond techno-optimism to approaches that centre plural epistemologies, relational accountability and community empowerment.
Metadata
| Item Type: | Article |
|---|---|
| Authors/Creators: |
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| Copyright, Publisher and Additional Information: | © 2026 The Author(s). This is an open-access article distributed under the terms of the Creative Commons Attribution 4.0 International License (CC-BY 4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. See https://creativecommons.org/ licenses/by/4.0/. |
| Keywords: | Open Science; epistemic harms; social justice; health data; research data; public health |
| Dates: |
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| Institution: | The University of Sheffield |
| Academic Units: | The University of Sheffield > Faculty of Social Sciences (Sheffield) > School of Education |
| Funding Information: | Funder Grant number WELLCOME TRUST (THE) 226705/Z/22/Z |
| Date Deposited: | 22 Apr 2026 10:05 |
| Last Modified: | 22 Apr 2026 10:05 |
| Status: | Published |
| Publisher: | Ubiquity Press, Ltd. |
| Refereed: | Yes |
| Identification Number: | 10.5334/dsj-2026-015 |
| Sustainable Development Goals: | |
| Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:240345 |
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