An implementation study of a remote monitoring platform to increase access to specialist care in motor neuron disease

Abstract

INTRODUCTION: The aim was to examine the engagement and acceptability of Telehealth in MND (TiM) as part of usual care within two specialist centers.

METHODS: Fifty people with MND (pwMND) completed questionnaires. Eight pwMND and carers participated in interviews.

RESULTS: In Shefield, 163 pwMND were invited to TiM with 52% registering and 85% engagement. In Dublin, 98 pwMND were invited to TiM, with 63% registering, and 95% engagement.High levels of acceptability were reported, with users rating TiM as very low in burden. Similar findings were demonstrated within the interviews, with ease of use a strength. However, participants discussed a need for more regular feedback from TiM. Future opportunities relating to integrating TiM with community services were discussed.

DISCUSSION: TiM is feasible and acceptable to pwMND. The high engagement can generate a wealth of data facilitating solution-focused clinical appointments. The study's findings support the further implementation of TiM in other MND services.

Metadata

Item Type:	Article
Authors/Creators:	Knox, L. https://orcid.org/0000-0003-2545-1046 Kennedy, P. Gilsenan, D. Murray, D. Galvin, M. Ali, Y. Hardiman, O. McDermott, C. Hobson, E.
Copyright, Publisher and Additional Information:	© 2026 The Authors. Except as otherwise noted, this author-accepted version of a journal article published in Neurodegenerative Disease Management is made available via the University of Sheffield Research Publications and Copyright Policy under the terms of the Creative Commons Attribution 4.0 International License (CC-BY 4.0), which permits unrestricted use, distribution and reproduction in any medium, provided the original work is properly cited. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/
Keywords:	Motor neuron disease; telehealth; engagement; acceptability; mixed methods
Dates:	Submitted: 16 June 2025 Accepted: 6 February 2026 Published (online): 18 February 2026 Published: 18 February 2026
Institution:	The University of Sheffield
Academic Units:	The University of Sheffield > Faculty of Medicine, Dentistry and Health (Sheffield) > School of Medicine and Population Health
Funding Information:	Funder Grant number MND SCOTLAND 2019/MNDS/RP/8360/HOB
Date Deposited:	20 Feb 2026 11:26
Last Modified:	20 Feb 2026 13:11
Status:	Published online
Publisher:	Taylor & Francis
Refereed:	Yes
Identification Number:	10.1080/17582024.2026.2629783
Related URLs:	PubMed URL
Open Archives Initiative ID (OAI ID):	oai:eprints.whiterose.ac.uk:238237

CORE (COnnecting REpositories)

An implementation study of a remote monitoring platform to increase access to specialist care in motor neuron disease

Abstract

Metadata

Download

Accepted Version

Export

Statistics