Identifying the impacts, obstacles and information barriers for parents of children living with genetic neurodevelopmental disorders: a qualitative study

Low, K.J. orcid.org/0000-0002-4975-9363, Treneman‐Evans, G., Wynn, S.L. et al. (1 more author) (2025) Identifying the impacts, obstacles and information barriers for parents of children living with genetic neurodevelopmental disorders: a qualitative study. Health Expectations, 28 (4). e70340. ISSN: 1369-6513

Abstract

Metadata

Item Type: Article
Authors/Creators:
Copyright, Publisher and Additional Information:

© 2025 The Author(s). This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. http://creativecommons.org/licenses/by/4.0/

Keywords: distress; genomics; parent; rare; Humans; Child; Qualitative Research; Parents; Male; Female; Neurodevelopmental Disorders; Adolescent; Child, Preschool; Adaptation, Psychological; Infant; Adult; United Kingdom; Infant, Newborn; Interviews as Topic
Dates:
  • Submitted: 16 July 2024
  • Accepted: 12 June 2025
  • Published (online): 3 July 2025
  • Published: August 2025
Institution: The University of Sheffield
Academic Units: The University of Sheffield > Faculty of Medicine, Dentistry and Health (Sheffield) > School of Medicine and Population Health
Depositing User: Symplectic Sheffield
Date Deposited: 26 Sep 2025 08:19
Last Modified: 26 Sep 2025 08:19
Status: Published
Publisher: Wiley
Refereed: Yes
Identification Number: 10.1111/hex.70340
Related URLs:
Sustainable Development Goals:
  • Sustainable Development Goals: Goal 3: Good Health and Well-Being
Open Archives Initiative ID (OAI ID):

Export

Statistics