Bailey, C. orcid.org/0000-0001-5030-430X and Peasgood, T. orcid.org/0000-0001-8024-7801 (2025) Content validity of the EQ-HWB in caregivers of children with health conditions. The Patient - Patient-Centered Outcomes Research. ISSN 1178-1653
Abstract
Introduction
The EQ Health and Wellbeing instrument (EQ-HWB) is a new generic instrument designed for evaluation across health, social care, community, and caregiver populations. It has 25-item (EQ-HWB) and 9-item (EQ-HWB-S) versions. Validation across target populations is needed. As the instrument remains in an ‘experimental’ phase, modifications are being considered, including to item wording, item order, and positive versus negative framing of three items. We aimed to investigate the content validity of the EQ-HWB for caregivers of children with chronic health conditions and explore the potential modifications.
Methods
In total, 21 caregivers from an Australian children’s hospital sample completed semi-structured interviews, answering the 25 EQ-HWB items while ‘thinking aloud’, followed by interviewer probing. Interviews and coding focused on the COSMIN components of relevance, comprehension (understanding), and comprehensiveness.
Results
Most EQ-HWB items were relevant and well understood by participants, especially the psychosocial items (e.g., loneliness, anxiety). Some participants were confused by the wording in the seeing and hearing items, which were also less relevant in this population. The item ‘feeling unsafe’ was only relevant for a few participants, but most considered it important. Responses to potential modifications to items were mixed. Many participants were keen to keep the three positively worded items. Some participants suggested that finishing with positive items may mitigate negative feelings on completion.
Conclusions
EQ-HWB items have high relevance and are generally well understood by caregivers of children with health conditions. We recommend endorsing the modifications we tested for the EQ-HWB-S.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © The Author(s) 2025. Open Access: This article is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License, which permits any non-commercial use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by-nc/4.0/. |
Keywords: | Health Services and Systems; Health Sciences; Clinical Research; Behavioral and Social Science; Pediatric; Mental health; Generic health relevance; Good Health and Well Being |
Dates: |
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Institution: | The University of Sheffield |
Academic Units: | The University of Sheffield > Faculty of Medicine, Dentistry and Health (Sheffield) > School of Medicine and Population Health |
Depositing User: | Symplectic Sheffield |
Date Deposited: | 02 Jul 2025 10:42 |
Last Modified: | 02 Jul 2025 10:42 |
Status: | Published online |
Publisher: | Springer Science and Business Media LLC |
Refereed: | Yes |
Identification Number: | 10.1007/s40271-025-00749-3 |
Related URLs: | |
Sustainable Development Goals: | |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:228619 |