Runswick-Cole, K. orcid.org/0000-0001-9658-9718, Smith, M. orcid.org/0000-0003-2499-4241, Ryan, S. et al. (1 more author) (2024) ‘Should we even have questions?’ From survey to exhibition – co-producing research about ‘mental health’ with carers and adults with learning disabilities. International Journal of Care and Caring. ISSN 2397-8821
Abstract
Carers’ mental health is often the focus of policy and research in Global North contexts. Research exploring carers’ views often uses survey methods to collect information about their experiences and views of services and support. However, the experiences of adult carers of adults with learning disabilities have often been marginalised within these domains. Here, we report on how, working together with family carers, we disrupted survey methods and generated new insights into what matters to family carers when sharing their experiences of care, mental health, services and support, as well as the crucial role of co-production in this research.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © Authors 2024. This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 International license (http://creativecommons.org/licenses/by-nc/4.0/). |
Keywords: | family carers; mental health; surveys; co-production |
Dates: |
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Institution: | The University of Sheffield |
Academic Units: | The University of Sheffield > Faculty of Social Sciences (Sheffield) > Faculty of Social Sciences Research Institute The University of Sheffield > Faculty of Social Sciences (Sheffield) > School of Education |
Funding Information: | Funder Grant number DEPARTMENT OF HEALTH AND SOCIAL CARE NIHR135080 |
Depositing User: | Symplectic Sheffield |
Date Deposited: | 28 Mar 2025 09:01 |
Last Modified: | 28 Mar 2025 09:01 |
Status: | Published online |
Publisher: | Bristol University Press |
Refereed: | Yes |
Identification Number: | 10.1332/23978821y2024d000000051 |
Related URLs: | |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:224962 |
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