Supporting children and young people when making decisions about joining clinical trials:qualitative study to inform multimedia website development

Martin-Kerry, Jacqueline Maree orcid.org/0000-0002-9299-1360, Knapp, Peter Raymond orcid.org/0000-0001-5904-8699, Atkin, Karl Michael orcid.org/0000-0003-1070-8670 et al. (9 more authors) (2019) Supporting children and young people when making decisions about joining clinical trials:qualitative study to inform multimedia website development. BMJ Open. e023984. ISSN 2044-6055

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Item Type: Article
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Funding Information: Acknowledgements We gratefully acknowledge all the children, young people, parents and health professionals who participated in the interviews and provided invaluable details about their needs and preferences of a healthcare trial website. We would like to thank members of our TRials Engagement in Children and Adolescents (TRECA) Study Advisory Group who are not authors on this paper (Professor Carrol Gamble, Professor Michael Beresford and Ms Robyn Challinor), the TRECA Study Steering Committee members (Professor Faith Gibson, Professor Louise Locock, Dr Bob Philips, Dr Louca-Mai Brady and Dr Matt Sydes) and the TRECA Study Patient and Parent Advisory Group for their input into the study. Thank you to those who helped us identify and recruit participants for the interviews. We would like to thank the SCIPI Trial Investigators for allowing us to use content from the SCIPI trial when developing these multimedia websites. The SCIPI trial was funded by the NIHR Health Technology Assessment programme (08/14/39). We would also like to thank the Hi-Light trial investigators for allowing access to their participant video for use in the interviews. We would also like to thank Morph (https://morph.co.uk/), who developed the multimedia websites based on data from each round of interviews. Funding Information: Funding The TRECA study was funded by the NIHR Health Services & Delivery Research Programme (project number 14/21/21). Publisher Copyright: © Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY. Published by BMJ.

Keywords: adolescents,children,clinical trials,informed consent,multimedia information,participatory design,qualitative research,websites,young people
Dates:
  • Published: 31 January 2019
  • Accepted: 9 October 2018
Institution: The University of York
Academic Units: The University of York > Faculty of Sciences (York) > Health Sciences (York)
The University of York > Faculty of Sciences (York) > Hull York Medical School (York)
Funding Information:
Funder
Grant number
NETSCC
14/21/21
Depositing User: Pure (York)
Date Deposited: 29 Oct 2018 09:40
Last Modified: 21 Jan 2025 17:36
Published Version: https://doi.org/10.1136/ bmjopen-2018-023984
Status: Published
Refereed: Yes
Identification Number: 10.1136/ bmjopen-2018-023984
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Open Archives Initiative ID (OAI ID):

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