Kerr, A and Cunningham-Burley, S (2015) Embodied innovation and regulation of medical technoscience: transformations in cancer patienthood. Law, Innovation and Technology, 7 (2). pp. 187-205. ISSN 1757-9961
Abstract
Biomedical advances are transforming the diagnosis and treatment of disease. Patienthood is also transforming, as patients actively participate in research, innovation and regulation of novel technologies and therapies. In this paper we explore the new kinds of practices that patients are performing in their roles as research subject, co-researchers, donors, campaigners, representatives and consumers of novel stratified therapies. We outline their embodied contributions to clinical trials, biobanks and stratified therapies prior to, during and after having cancer. Exploring how patienthood involves donating more than tissue or data to these developments, we consider their emotional and identity work which informs and shapes the novel diagnostics and therapies being developed. We also consider how this kind of work is stratified according to the social and biological location of participants, and end by reflecting on the implications of our analysis for the organisation and regulation of biomedicine.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2015 The Author(s). Published by Taylor & Francis. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. |
Keywords: | Cancer, genomics, patients, participation, work, |
Dates: |
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Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Education, Social Sciences and Law (Leeds) > School of Sociology and Social Policy (Leeds) |
Funding Information: | Funder Grant number Wellcome Trust 104832/Z/14/Z |
Depositing User: | Symplectic Publications |
Date Deposited: | 07 Oct 2016 08:42 |
Last Modified: | 11 Apr 2018 13:25 |
Published Version: | http://dx.doi.org/10.1080/17579961.2015.1106103 |
Status: | Published |
Publisher: | Taylor & Francis |
Identification Number: | 10.1080/17579961.2015.1106103 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:97687 |