Harley, C orcid.org/0000-0002-8800-4238, Adams, J, Booth, L et al. (3 more authors) (2009) Patient Experiences of Continuity of Cancer Care: Development of a new Medical Care Questionnaire (MCQ) for Oncology Outpatients. Value in Health, 12 (8). pp. 1180-1186. ISSN 1098-3015
Abstract
Objectives: To adapt the Components of Primary Care Index (CPCI) to be applicable to oncology outpatients and to assess the reliability and validity of the adapted instrument (renamed the Medical Care Questionnaire (MCQ)).
Methods: The development and validation of the MCQ took place in four phases. Phase 1 reviewed the literature and examined existing measures. In Phase 2 the selected instrument (CPCI) was reviewed by a panel of experts using a stepwise consensus procedure. In Phase 3 the adapted 21-item MCQ was administered to 200 outpatients attending oncology appointments. The instrument was refined to 15-items and in Phase 4 it was completed by 477 oncology outpatients. The psychometric properties of the new instrument were assessed using exploratory factor analysis, multi-trait scaling analysis and by comparing MCQ scores between known groups.
Results: Exploratory factor analysis of the 15-item MCQ suggested 3 subscales with acceptable to good reliability: “Communication” α=0.69; “Coordination” α=0.84; and “Preferences” α=0.75. Comparing known groups showed that patients who saw fewer doctors during their clinic visits reported stronger “Preferences” to see their usual doctor and rated “Communication” with their doctors as better than patients who saw more doctors during their clinic visits.
Conclusion: The MCQ demonstrates good psychometric properties in the target population. It is a brief and simple to use instrument, which provides a valid perspective on patients’ experiences of communicating with doctors and their perceptions of the continuity and coordination of their cancer care.
Patient Experiences of Continuity of Cancer Care: Development of a new Medical Care Questionnaire (MCQ) for Oncology Outpatients
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2009 International Society for Pharmacoeconomics and Outcomes Research (ISPOR). Published by Elsevier Inc. All rights reserved. This is an author produced version of a paper published in Value in Health. Uploaded in accordance with the publisher's self-archiving policy. |
Keywords: | communication; psychometric properties; patient-reported outcomes; questionnaire development; cancer |
Dates: |
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Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Healthcare (Leeds) > Nursing Adult (Leeds) The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Medicine (Leeds) > Leeds Institute of Cancer and Pathology (LICAP) > Biomarkers and Therapy (Leeds) The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Medicine (Leeds) > Leeds Institute of Cancer and Pathology (LICAP) > Patient Centred Outcomes Research The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Medicine (Leeds) > Inst of Clinical Trials Research (LICTR) (Leeds) |
Depositing User: | Symplectic Publications |
Date Deposited: | 02 Jul 2019 10:13 |
Last Modified: | 02 Jul 2019 10:13 |
Status: | Published |
Publisher: | Elsevier |
Identification Number: | 10.1111/j.1524-4733.2009.00574.x |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:96657 |