Stark, D, Bielack, S, Brugieres, L et al. (21 more authors) (2016) Teenagers and young adults with cancer in Europe: From national programmes to a European integrated coordinated project. European Journal of Cancer Care, 25 (3). pp. 419-427. ISSN 0961-5423
Abstract
Over 14 000 patients aged 15-24 are estimated to be diagnosed with cancer in the European Union (EU) each year. Teenagers and young adults (TYA) often fall down gaps between children's and adults cancer services. The specific challenges of providing optimal care to them are described, but we present a summary of recent progress. Progress to overcome these challenges is happening at different rates across Europe. We summarise the European national projects in this field but more recently we have seen the beginnings of European coordination. Within the EU 7th Funding Programme (FP7) European Network for Cancer Research in Children and Adolescents programme (ENCCA), a specific European Network for Teenagers and Young Adults with Cancer has held a series of scientific meetings, including professionals, patients and caregivers. This group has proposed unanswered research questions and agreed key features of a high-quality service that can improve outcomes for TYA with cancer, including the primacy of collaboration between adult and paediatric services to eliminate the gap in the management of TYA with cancer.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2015 John Wiley & Sons Ltd. This is the peer reviewed version of the following article: Stark D., Bielack S., Brugieres L., Dirksen U., Duarte X., Dunn S., Erdelyi D.J., Grew T., Hjorth L., Jazbec J., Kabickova E., Konsoulova A., Kowalczyk J.R., Lassaletta A., Laurence V., Lewis I., Monrabal A., Morgan S., Mountzios G., Olsen P.R., Renard M., Saeter G., van der Graaf W.T. & Ferrari A. (2015) European Journal of Cancer Care, Teenagers and young adults with cancer in Europe: from national programmes to a European integrated coordinated project, which has been published in final form at http://dx.doi.org/10.1111/ecc.12365. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving. |
Keywords: | teenagers; adolescents; cancer |
Dates: |
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Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Medicine and Health (Leeds) > Institute of Molecular Medicine (LIMM) (Leeds) > Section of Pathology (Leeds) > Pathology (Leeds) |
Depositing User: | Symplectic Publications |
Date Deposited: | 03 Mar 2016 14:17 |
Last Modified: | 16 Nov 2016 16:48 |
Published Version: | http://dx.doi.org/10.1111/ecc.12365 |
Status: | Published |
Publisher: | Wiley |
Identification Number: | 10.1111/ecc.12365 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:95007 |