Spiers, Gemma Frances orcid.org/0000-0003-2121-4529 (2015) Choice and caring:the experiences of parents supporting young people with Autistic Spectrum Conditions as they move into adulthood. Children & Society. pp. 546-557. ISSN 1099-0860
Abstract
This paper reports findings about parents' experiences of caring for young people with Autistic Spectrum Conditions (ASCs) moving into adulthood. In-depth interviews were conducted with 38 parents of young people (15-21 years) with ASCs. Data were analysed thematically. In the perceived absence of service support, parents acted as 'care-coordinators' and 'life-supporters' for their child as they moved into adulthood. These roles came with little choice, emotional demands and personal restrictions. Being supported was important for parents, but preferences differed regarding what this should look like. Implications for policy are discussed.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2014 John Wiley & Sons. This is an author produced version of a paper published in Children & Society. Uploaded in accordance with the publisher's self-archiving policy. |
Keywords: | transition,social care services,young adults,autistic spectrum conditions,families,parents' perspectives,carers,choice |
Dates: |
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Institution: | The University of York |
Academic Units: | The University of York > Research Groups (York) > Social Policy Research Unit (York) |
Depositing User: | Pure (York) |
Date Deposited: | 07 Dec 2015 13:49 |
Last Modified: | 26 Nov 2024 00:29 |
Published Version: | https://doi.org/10.1111/chso.12104 |
Status: | Published |
Refereed: | Yes |
Identification Number: | 10.1111/chso.12104 |
Related URLs: | |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:89150 |