Gilbert, A, Sebag-Montefiore, D, Davidson, S et al. (1 more author) (2015) Use of patient-reported outcomes to measure symptoms and health related quality of life in the clinic. Gynecologic Oncology, 136 (3). pp. 429-439. ISSN 0090-8258
Abstract
There is increasing interest in the use of patient-reported outcomes (PROs) in routine practice in cancer care to measure symptoms and health related quality of life (HRQOL). PROs are designed to capture the patient's perspective of their care and treatment, and complement the traditional clinical outcomes of survival and toxicity assessment. Integrating routine collection and feedback of PROs has been found to improve care for patients on both an individual level, through improved communication and management of symptoms, and at an organizational level, by enabling aggregation of data to compare performance. This article reviews the benefits and challenges of introducing patient-reported assessments into routine clinical practice. Methods for choosing a questionnaire; collection and presentation of results; timing and frequency of administration as well as clinician training methods to aid the ability of clinicians to integrate the use of PROs into their own practice are described. Electronic PRO capture and integration with electronic health records seems to provide the most effective method for seamless integration into existing patient care pathways. Case studies from our own practice illustrate the issues raised. Electronic methods enabling immediate collection, scoring and interpretation of the data, as well as real-time data capture, email alert systems and individualized, online self-management advice may enable severe symptoms to be managed in a more timely manner. Evaluation methods are described to establish the effectiveness of the PRO intervention. Engaging stakeholders throughout the process of initial consultation and development, during delivery and evaluation is key to success. Future work needs to focus on the effectiveness of PROs in longer-term follow-up of patients in routine care and the relationship between the PRO severity grading and clinician severity grading using the Common Terminology Criteria of Adverse Events (CTCAE).
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2014 Elsevier Inc. All rights reserved. This is an author produced version of a paper published in Gynecologic Oncology. Uploaded in accordance with the publisher's self-archiving policy. |
Keywords: | Patient report outcomes; Symptoms; Health related quality of life; Clinical practice; Internet; Electronic data capture |
Dates: |
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Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Medicine (Leeds) |
Funding Information: | Funder Grant number National Inst for Health Research (NIHR) Not Known |
Depositing User: | Symplectic Publications |
Date Deposited: | 07 Jan 2016 14:03 |
Last Modified: | 03 Nov 2017 08:10 |
Published Version: | http://dx.doi.org/10.1016/j.ygyno.2014.11.071 |
Status: | Published |
Publisher: | Elsevier |
Identification Number: | 10.1016/j.ygyno.2014.11.071 |
Related URLs: | |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:88844 |