Horne, B, Newsham, A, Velikova, G orcid.org/0000-0003-1899-5942 et al. (3 more authors) (2016) Development and evaluation of a specifically designed website for haematopoietic stem cell transplant patients in Leeds. European Journal of Cancer Care, 25 (3). pp. 402-418. ISSN 0961-5423
Abstract
The purpose of this project was to develop and evaluate a specifically designed website (ALLograft INformation EXchange – ALLINEX) for adult allogeneic haematopoietic stem cell transplant (allo-HSCT) patients in Leeds. Specifications included information on the transplant journey and supportive care services, discussion forum and patient-clinical team electronic messaging service. The method followed a participatory action research approach in a five-phase project involving stakeholders. Phase 1 involved information gathering; Phase 2 development of content; Phase 3 building of website and usability testing; Phase 4 preliminary evaluation; and Phase 5 clinical implementation. Results concluded that Phase 1 patients were unaware of all services and reported unmet needs; gaps in support services were identified from a service evaluation; Phase 2 content was collected from experts, collated and synthesised; Phase 3 patient and staff feedback was positive and constructive resulting in more than 50 changes; Phase 4 ALLINEX evaluation demonstrated acceptable usability with good layout, content and aesthetics reported; Phase 5, over 15 weeks, ALLINEX had 6630 page hits, 9 new forum topics posted and received 3 clinical messages. The clinical team embraced responsibility for reviewing and monitoring ALLINEX. Financial and indemnity cover was secured for 3 years. ALLINEX, adopted locally, is sustainable and has functionality to roll-out to other UK allo-HSCT centres.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Keywords: | haematopoietic stem cell transplant, website, information, support, patients, ALLINEX |
Dates: |
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Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Medicine (Leeds) > Leeds Institute of Cancer and Pathology (LICAP) > Clinical Cancer Research (Leeds) The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Medicine (Leeds) > Leeds Institute of Health Sciences (Leeds) > Centre for Health Services Research (Leeds) |
Depositing User: | Symplectic Publications |
Date Deposited: | 02 Sep 2016 10:58 |
Last Modified: | 04 Nov 2016 06:47 |
Published Version: | http://dx.doi.org/10.1111/ecc.12352 |
Status: | Published |
Publisher: | Wiley |
Identification Number: | 10.1111/ecc.12352 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:88605 |