Lichtner, V (2014) The everyday ethics of field work research with vulnerable patients. Studies in Health Technology and Informatics, 205. 813 - 817. ISSN 0926-9630
Abstract
Patients are increasingly involved in health informatics research. Researchers are always aware of the ethical dimensions of their research, but studies in the field with patients--especially among the frail, elderly, cognitively impaired--present specific additional 'everyday moral dilemmas'. Reflecting on experiences of a hospital study of patients with dementia, this paper draws attention on the type and constant presence of this situated ethics, the immediacy of decision-making, and the importance of everyday ethics for health informatics.
Metadata
| Item Type: | Article |
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| Authors/Creators: |
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| Copyright, Publisher and Additional Information: | © 2014, European Federation for Medical Informatics and IOS Press. This article is published online with Open Access by IOS Press and distributed under the terms of the Creative Commons Attribution Non-Commercial License. |
| Keywords: | Health informatics; research methods; ethics; patients |
| Dates: |
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| Institution: | The University of Leeds |
| Academic Units: | The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Healthcare (Leeds) > Nursing Adult (Leeds) |
| Depositing User: | Symplectic Publications |
| Date Deposited: | 16 Oct 2015 14:09 |
| Last Modified: | 16 Oct 2015 14:09 |
| Published Version: | http://dx.doi.org/10.3233/978-1-61499-432-9-813 |
| Status: | Published |
| Publisher: | IOS Press |
| Identification Number: | 10.3233/978-1-61499-432-9-813 |
| Related URLs: | |
| Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:85566 |
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