Smith, J orcid.org/0000-0003-0974-3591, Swallow, V orcid.org/0000-0001-8504-4704 and Coyne, I (2015) Involving Parents in Managing Their Child's Long-Term Condition—A Concept Synthesis of Family-Centered Care and Partnership-in-Care. Journal of Pediatric Nursing, 30 (1). pp. 143-159. ISSN 0882-5963
Abstract
Fostering effective engagement, collaboration and empowerment are central to supporting parents caring for children with long-term conditions. Methods: A concept synthesis was undertaken to identify the shared antecedents and attributes underpinning models of family-centered care and partnership-in-care. Results: Thirty studies were reviewed; antecedents of models related to unclear roles, entrenched professional practices, and lack of guidelines supporting their implementation; with central attributes being building trust, listening to parent concerns and valuing parents. ' knowledge of their child. Conclusion: The key attributes are outlined in a practical framework of involvement which may promote parent-professional collaboration for families of children with long-term conditions.
Metadata
Item Type: | Article |
---|---|
Authors/Creators: |
|
Copyright, Publisher and Additional Information: | Copyright © 2015 Elsevier Inc. This an author produced version of a paper published in Journal of Pediatric Nursing. Uploaded in accordance with the publisher's self-archiving policy. |
Keywords: | Family-centered care; Collaboration; Partnership; Parent; Child |
Dates: |
|
Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Healthcare (Leeds) > Nursing Child (Leeds) |
Depositing User: | Symplectic Publications |
Date Deposited: | 20 Jul 2015 14:45 |
Last Modified: | 02 Dec 2020 08:24 |
Published Version: | http://dx.doi.org/10.1016/j.pedn.2014.10.014 |
Status: | Published |
Publisher: | Elsevier |
Identification Number: | 10.1016/j.pedn.2014.10.014 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:84826 |