My Life:Growing up and living with Ataxia-Telangiectasia: young people's and young adults' experiences

Abstract

The A-T Society was seeking to understand more about the lives of young people, their priorities and aspirations, and what got in the way of them living the lives that they want to live. The Society also wanted to know young people's views about the support and services it provided to young people with A-T and their families.The key purpose of the project was to hear and give a voice to, the experiences of young people with A-T. Their views and experiences are prioritised in this report.

Metadata

Item Type:	Monograph
Authors/Creators:	Beresford, Bryony Anne https://orcid.org/0000-0003-0716-2902 Moran, Nicola Elizabeth https://orcid.org/0000-0002-6219-0394 Clarke, Susan Evelyn
Keywords:	young people,ill children and young people,young people's views,Young people with degenerative conditions,FAMILY,ATAXIA-TELANGIECTASIA,A-T,support services
Dates:	Published: 2013
Institution:	The University of York
Academic Units:	The University of York > Research Groups (York) > Social Policy Research Unit (York)
Funding Information:	Funder Grant number THE ATAXIA-TELANGIECTASIA SOCIETY UNSPECIFIED
Depositing User:	Pure (York)
Date Deposited:	05 Feb 2014 10:00
Last Modified:	17 Dec 2024 00:31
Status:	Published
Publisher:	Social Policy Research Unit, University of York
Related URLs:	http://www.york.ac.uk/inst/spru/research...
Open Archives Initiative ID (OAI ID):	oai:eprints.whiterose.ac.uk:77083

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My Life:Growing up and living with Ataxia-Telangiectasia: young people's and young adults' experiences

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