Kendall, L, Parsons, J, Sloper, P et al. (1 more author) (2007) A simple screening method for determining knowledge of the appropriate levels of activity and risk behaviour in young people with congenital cardiac conditions. Cardiology in the Young. pp. 151-157. ISSN 1047-9511
Abstract
Objective: To assess a novel method for assessing risk and providing advice about activity to children and young people with congenital cardiac disease and their parents. Design and setting: Questionnaire survey in outpatient clinics at a tertiary centre dealing with congenital cardiac disease, and 6 peripheral clinics. Interventions: Children or their parents completed a brief questionnaire. If this indicated a desire for help, or a serious mismatch between advised and real level of activity, they were telephoned by a physiotherapist. Main measures of outcome: Knowledge about appropriate levels of activity, and identification of the number exercising at an unsafe level, the number seeking help, and the type of help required. Results: 253/258 (98.0%) questionnaires were returned, with 119/253 (47.0%) showing incorrect responses in their belief about their advised level of exercise; 17/253 (6.7%) had potentially dangerous overestimation of exercise. Asked if they wanted advice 93/253 (36.8%) said “yes”, 43/253 (17.0%) “maybe”, and 117/253 (46.2%) “no”. Of those contacted by phone to give advice, 72.7% (56/77) required a single contact and 14.3% (11/77) required an intervention that required more intensive contact lasting from 2 up to 12 weeks. Of the cohort, 3.9% (3/77) were taking part in activities that put them at significant risk. Conclusions: There is a significant lack of knowledge about appropriate levels of activity, and a desire for further advice, in children and young people with congenital cardiac disease. A few children may be at very significant risk. These needs can be identified, and clinical risk reduced, using a brief self-completed questionnaire combined with telephone follow-up from a suitably knowledgeable physiotherapist.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2007 Cambridge University Press. Reproduced in accordance with the publisher's self archiving policy. (Available from April 2008) |
Keywords: | congenital heart defects,physical activity,exercise prescription,risk behaviour,physiotherapy,multidisciplinary team,HEART-DISEASE,PHYSICAL-ACTIVITY,CARDIOVASCULAR-DISEASE,SPORTS PARTICIPATION,CLINICAL CARDIOLOGY,REHABILITATION,EXERCISE,RECOMMENDATIONS,PREVENTION,STATEMENT |
Dates: |
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Institution: | The University of York |
Academic Units: | The University of York > Research Groups (York) > Social Policy Research Unit (York) The University of York > Faculty of Sciences (York) > Biology (York) The University of York > Faculty of Sciences (York) > Health Sciences (York) |
Depositing User: | Repository Officer |
Date Deposited: | 24 Jan 2008 12:12 |
Last Modified: | 25 Jan 2025 00:04 |
Published Version: | https://doi.org/10.1017/S1047951107000285 |
Status: | Published |
Refereed: | Yes |
Identification Number: | 10.1017/S1047951107000285 |
Related URLs: | |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:3589 |