Claxton, K. orcid.org/0000-0003-2002-4694, Raftery, J., McCabe, C. et al. (1 more author) (2006) Orphan drugs revisited:[comment]. QJM Monthly Journal of the Association of Physicians. discussion 350. pp. 341-5. ISSN 1460-2393
Abstract
Hughes et al.1 recently discussed arguments for and against giving special funding status to orphan drugs in this journal. They concluded that there should be a uniform policy across Europe, that complete restriction was impractical, and that UK policy should aspire to the values of the EU directive. The aims of this paper are to correct some inaccuracies in the original paper, develop some of the key issues, and to draw some conclusions regarding the question ‘Do drugs for exceptionally rare disease deserve special status for funding?’ For ease, our paper adopts the same structure as the original.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © The Author 2006. Published by Oxford University Press on behalf of the Association of Physicians. All rights reserved. For Permissions, please email: journals.permissions@oxfordjournals.org The online version of this article has been published under an open access model. Users are entitled to use, reproduce, disseminate, or display the open access version of this article for non-commercial purposes provided that: the original authorship is properly and fully attributed; the Journal and Oxford University Press are attributed as the original place of publication with the correct citation details given; if an article is subsequently reproduced or disseminated not in its entirety but only in part or as a derivative work this must be clearly indicated. For commercial re-use, please contact journals.permissions@oupjournals.org |
Keywords: | Attitude of Health PersonnelEthics,MedicalEuropeHumansLegislation,Drug/es [Ethics]*Orphan Drug Production/ec [Economics]Orphan Drug Production/es [Ethics]Orphan Drug Production/lj [Legislation & Jurisprudence]*Rare Diseases/dt [Drug Therapy]Rare Diseases/ec [Economics],RARE DISEASES |
Dates: |
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Institution: | The University of York |
Academic Units: | The University of York > Faculty of Social Sciences (York) > Economics and Related Studies (York) |
Depositing User: | Mrs JM Wright |
Date Deposited: | 13 Dec 2007 13:42 |
Last Modified: | 21 Jan 2025 17:13 |
Published Version: | https://doi.org/10.1093/qjmed/hcl033 |
Status: | Published |
Refereed: | Yes |
Identification Number: | 10.1093/qjmed/hcl033 |
Related URLs: | |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:3532 |
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