A National Evaluation of Outcomes in Long COVID Services using Digital PROM Data from the ELAROS Platform

NHS England commissioned the University of Leeds team and ELAROS digital company to evaluate outcomes in a sample of Long COVID (LC) services in England using the ELAROS Digital Patient Reported Outcome Measures (PROMs) platform for recording outcome measures. The aims of the evaluation were to understand; a) the extent of symptom burden and functional disability in individuals accessing care in NHS-funded LC services, and b) condition trajectories and the extent of change in the severity of the condition in individuals receiving care in these services. This report provides details on data collection methods, participants, PROM data analysis, interpretation of results, and clinical implications. The report also describes the limitations in interpreting the results and makes recommendations for future work to be undertaken by NHS England, LC services, local commissioners, and individuals with LC. NHS England will share outputs from any additional analyses of patient outcomes, healthcare utilisation and models of care in due course as these become available.