Alasmari, B., Cox, A. orcid.org/0000-0002-2587-245X, Rutter, S. orcid.org/0000-0002-3249-5269 et al. (1 more author) (2025) Mothers' use of social media as a health information source about child autism in Saudi Arabia. In: Proceedings of the Association for Information Science and Technology. 88th Annual Meeting of the Association for Information Science & Technology, 14-18 Nov 2025, Washington, DC, USA. Wiley, pp. 860-865. ISSN: 2373-9231. EISSN: 2373-9231.
Abstract
In Saudi Arabia, mothers of autistic children face difficulties accessing accurate information and reliable support due to limited services and social stigma. This paper presents early findings from an ongoing qualitative study exploring mothers' information behaviour, including how they seek, evaluate, and use autism-related information via social media and AI tools. Based on interviews with six mothers of autistic children, the study shows how social media provides emotional validation, peer support, and practical insights. Mothers evaluate information based on how often they encounter it, personal experience, and ChatGPT, which they use to verify, simplify, or explain information. Alexa also became a communication aid for a blind autistic child. These findings reveal how mothers actively manage uncertainty and compensate for gaps in professional support. The paper contributes to understanding autism-related information behaviour in a Saudi context. It highlights the need for more accessible, accurate digital resources for underserved families lacking trained professionals, public awareness, and inclusive education options.
Metadata
| Item Type: | Proceedings Paper |
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| Authors/Creators: |
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| Copyright, Publisher and Additional Information: | © 2025 The Authors. Except as otherwise noted, this author-accepted version of a paper published in Proceedings of the Association for Information Science and Technology is made available via the University of Sheffield Research Publications and Copyright Policy under the terms of the Creative Commons Attribution 4.0 International License (CC-BY 4.0), which permits unrestricted use, distribution and reproduction in any medium, provided the original work is properly cited. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ |
| Keywords: | Autism Spectrum; Neurodiversity; Information Behavior; Social Media; Generative AI. |
| Dates: |
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| Institution: | The University of Sheffield |
| Academic Units: | ?? Sheffield.IJC ?? The University of Sheffield > Faculty of Social Sciences (Sheffield) > Information School (Sheffield) |
| Date Deposited: | 07 Nov 2025 16:43 |
| Last Modified: | 07 Nov 2025 16:43 |
| Status: | Published |
| Publisher: | Wiley |
| Refereed: | Yes |
| Identification Number: | 10.1002/pra2.1303 |
| Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:234187 |
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Filename: AlasmariBayanAM25ShortPaper.pdf
Licence: CC-BY 4.0

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