Understanding health-related quality of life of informal carers in amyotrophic lateral sclerosis: a scoping review and conceptual framework

Bamber, R., Carlton, J., McDermott, C. et al. (1 more author) (2025) Understanding health-related quality of life of informal carers in amyotrophic lateral sclerosis: a scoping review and conceptual framework. Health and Quality of Life Outcomes, 23 (1). 90. ISSN: 1477-7525

Abstract

Metadata

Item Type: Article
Authors/Creators:
  • Bamber, R.
  • Carlton, J.
  • McDermott, C.
  • Stavroulakis, T.
Copyright, Publisher and Additional Information:

© The Author(s) 2025. Open Access: This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/.

Keywords: Amyotrophic lateral sclerosis; Motor Neuron Disease; Caregiving; Caring; Carer; Quality of Life; Health-Related Quality of Life; Conceptual Framework; Person Reported Outcome Measure
Dates:
  • Accepted: 26 August 2025
  • Published (online): 29 September 2025
  • Published: 29 September 2025
Institution: The University of Sheffield
Academic Units: The University of Sheffield > Faculty of Medicine, Dentistry and Health (Sheffield) > Department of Neuroscience (Sheffield)
Date Deposited: 06 Oct 2025 11:29
Last Modified: 06 Oct 2025 11:29
Status: Published
Publisher: Springer Science and Business Media LLC
Refereed: Yes
Identification Number: 10.1186/s12955-025-02427-2
Open Archives Initiative ID (OAI ID):

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