Patient reported outcome measures require scale metrification and quantified precision: evidence from the assessment of breathlessness in people with ALS/MND

Young, C.A. orcid.org/0000-0003-1745-7720, Chaouch, A., Mcdermott, C.J. orcid.org/0000-0002-1269-9053 et al. (6 more authors) (2025) Patient reported outcome measures require scale metrification and quantified precision: evidence from the assessment of breathlessness in people with ALS/MND. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration. ISSN: 2167-8421

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Item Type: Article
Authors/Creators:
Copyright, Publisher and Additional Information:

© 2025 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. The terms on which this article has been published allow the posting of the Accepted Manuscript in a repository by the author(s) or with their consent.

Keywords: Rasch analysis; patient reported outcome measure; TONiC-ALS study; breathlessness; dyspnea
Dates:
  • Submitted: 9 January 2025
  • Accepted: 8 July 2025
  • Published (online): 20 July 2025
  • Published: 20 July 2025
Institution: The University of Sheffield
Academic Units: The University of Sheffield > Faculty of Medicine, Dentistry and Health (Sheffield) > School of Medicine and Population Health
Funding Information:
Funder
Grant number
Economic and Social Research Council
ES/L008238/1
Medical Research Council
MR/L501529/1
Depositing User: Symplectic Sheffield
Date Deposited: 31 Jul 2025 08:21
Last Modified: 31 Jul 2025 08:21
Status: Published online
Publisher: Taylor and Francis Group
Refereed: Yes
Identification Number: 10.1080/21678421.2025.2533870
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Sustainable Development Goals:
  • Sustainable Development Goals: Goal 3: Good Health and Well-Being
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