Health-related quality of life of informal carers in ALS: a systematic review of person reported outcome measures

Bamber, R. orcid.org/0009-0006-1615-1817, Stavroulakis, T. orcid.org/0000-0002-3535-7822, McDermott, C. orcid.org/0000-0002-1269-9053 et al. (1 more author) (2025) Health-related quality of life of informal carers in ALS: a systematic review of person reported outcome measures. Quality of Life Research. ISSN 0962-9343

Abstract

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Item Type: Article
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© The Author(s) 2025. Open Access: This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/.

Keywords: Amyotrophic lateral sclerosis; Motor neuron disease; COSMIN; Caring; Carers; Quality of life; Health-related quality of life; Content Validity; Systematic review; Person reported outcome measure
Dates:
  • Accepted: 16 June 2025
  • Published (online): 25 June 2025
  • Published: 25 June 2025
Institution: The University of Sheffield
Academic Units: The University of Sheffield > Faculty of Medicine, Dentistry and Health (Sheffield) > School of Medicine and Population Health
The University of Sheffield > Faculty of Medicine, Dentistry and Health (Sheffield) > Department of Neuroscience (Sheffield)
Funding Information:
Funder
Grant number
DEPARTMENT OF HEALTH AND SOCIAL CARE
NIHR301648
Depositing User: Symplectic Sheffield
Date Deposited: 02 Jul 2025 10:33
Last Modified: 02 Jul 2025 10:33
Status: Published online
Publisher: Springer Science and Business Media LLC
Refereed: Yes
Identification Number: 10.1007/s11136-025-04012-y
Open Archives Initiative ID (OAI ID):

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