Devi, R. orcid.org/0000-0003-2834-8597, Haunch, K.J., Graham, E.H. et al. (8 more authors) (2025) The uncertainties and questions of care home residents, relatives and staff as a basis for evidence-based improvement and research. Age and Ageing, 54 (5). afaf125. ISSN 0002-0729
Abstract
Background Research in long-term residential care settings (or care homes) for older people should address questions and uncertainties that matter most for those receiving and delivering care. Whether research does this effectively is unclear. In part, because the uncertainties and questions of key stakeholders are unmapped.
Objective To capture and prioritise the uncertainties of older people living in care homes, their relatives and staff.
Methods A three-phase mixed-methods study: (i) gathering uncertainties, (ii) data analysis and (iii) prioritisation. Phase 1 used interviews to gather uncertainties from residents (n = 14), relatives (n = 10) and staff (n = 44). In phase 2, uncertainties were coded using thematic inductive analysis, represented as ‘foreground’ (necessitating research) or ‘background’ (not needing research) questions, and a prioritisation tool developed. The tool included optional open-text responses, capturing new questions fitting (and additional detail around) the existing subthemes. During phase 3, the prioritisation tool was completed by residents (n = 95), relatives (n = 85) and staff (n = 158).
Results 319 uncertainties were identified: 274 foreground (research-based) and 45 background (fact-based) questions. Six broad and 38 subthemes were developed. Broad themes included (i) communal living, (ii) health and care services, (iii) resident care, (iv) residents’ health and well-being, (v) residents’ daily life and (vi) care home staff. Priority subthemes included enjoy living with others, dignity and respect, support with emotions, meaningful activities, and staff recruitment and retention.
Conclusion This is the first study of care home prioritised uncertainties informed by residents, relatives and staff. The uncertainty-based questions represent important targets for care home research and practice improvement.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | This is an author produced version of an article published in Age and Ageing, made available under the terms of the Creative Commons Attribution License (CC-BY), which permits unrestricted use, distribution and reproduction in any medium, provided the original work is properly cited. |
Keywords: | research priorities, long-term care, care homes, older people, priority setting |
Dates: |
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Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Healthcare (Leeds) |
Depositing User: | Symplectic Publications |
Date Deposited: | 18 Mar 2025 11:44 |
Last Modified: | 12 Jun 2025 23:31 |
Status: | Published |
Publisher: | Oxford University Press |
Identification Number: | 10.1093/ageing/afaf125 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:224538 |