Exploring the needs and preferences of people with amyotrophic lateral sclerosis (ALS) when making genomic testing decisions: an interview study

Howard, J., Bekker, H. L. orcid.org/0000-0003-1978-5795, McDermott, C. J. et al. (1 more author) (2025) Exploring the needs and preferences of people with amyotrophic lateral sclerosis (ALS) when making genomic testing decisions: an interview study. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration. ISSN 2167-8421

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Item Type: Article
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© 2025 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives License (http://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited, and is not altered, transformed, or built upon in any way. The terms on which this article has been published allow the posting ofthe Accepted Manuscript in a repository by the author(s) or with their consent.

Keywords: Genetic testing, genomic testing, whole genome sequencing, motor neuron disease, amyotrophic lateral sclerosis,patient decision aids, shared decision-making
Dates:
  • Published (online): 27 February 2025
  • Accepted: 15 February 2025
Institution: The University of Leeds
Academic Units: The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Medicine (Leeds) > Leeds Institute of Health Sciences (Leeds) > Academic Unit of Psychiatry and Behavioural Sciences (Leeds)
Funding Information:
Funder
Grant number
MOTOR NEURONE DISEASE ASSOCIATION
Not Known
Depositing User: Symplectic Publications
Date Deposited: 19 Feb 2025 11:53
Last Modified: 17 Mar 2025 15:15
Published Version: https://www.tandfonline.com/doi/full/10.1080/21678...
Status: Published online
Publisher: Taylor & Francis
Identification Number: 10.1080/21678421.2025.2469727
Open Archives Initiative ID (OAI ID):

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