Lloyd, K.E. orcid.org/0000-0002-0420-2342 and Smith, S.G. orcid.org/0000-0003-1983-4470 (2025) Dataset for a qualitative interview study exploring the barriers and facilitators to using and recommending aspirin for cancer prevention. Health Psychology and Behavioral Medicine, 13 (1). 2463916. ISSN 2164-2850
Abstract
Introduction
Aspirin is increasingly recommended for colorectal cancer prevention for people with Lynch syndrome, who are at higher risk. Before starting aspirin, patients should be reviewed by a healthcare professional for contraindications. We conducted interviews to explore the views of people with Lynch syndrome and healthcare professionals on aspirin for cancer prevention. While open data sharing is increasingly implemented for quantitative research, it is less likely to be adopted for qualitative data. We aimed to create and share a qualitative dataset of the interview transcripts in a restricted access repository.
Methods
We interviewed 15 people with Lynch syndrome and 23 healthcare professionals. Healthcare professionals included general practitioners (GPs), community pharmacists, genetic counsellors, and specialist hospital clinicians (e.g. genetics, gastroenterology). The interview schedule was informed by the Theoretical Domains Framework. Interviews were conducted over video or telephone.
Results
Participants could consent to their anonymised interview transcript being deposited in a restricted repository, with access limited to people using the data for non-commercial research, learning or teaching purposes. Those who did not consent could still participate in the interview. Several transcripts were removed due to identifiability concerns. In total, we deposited 12 transcripts with people with Lynch syndrome, and 8 transcripts with GPs.
Discussion
To safeguard participants’ identities, we fully anonymised the dataset. While this acted to protect participants’ identities, it also potentially reduced its usability due to the removal of rich contextual detail. When sharing qualitative data, it is important to balance confidentiality with data reusability.
Metadata
Item Type: | Article |
---|---|
Authors/Creators: |
|
Copyright, Publisher and Additional Information: | © 2025 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. The terms on which this article has been published allow the posting of the Accepted Manuscript in a repository by the author(s) or with their consent. |
Keywords: | Cancer prevention; aspirin; Lynch syndrome; qualitative; data sharing |
Dates: |
|
Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Medicine (Leeds) > Leeds Institute of Health Sciences (Leeds) > Academic Unit of Primary Care (Leeds) |
Funding Information: | Funder Grant number ESRC (Economic and Social Research Council) Not Known |
Depositing User: | Symplectic Publications |
Date Deposited: | 17 Feb 2025 14:24 |
Last Modified: | 17 Feb 2025 14:24 |
Published Version: | https://www.tandfonline.com/doi/full/10.1080/21642... |
Status: | Published |
Publisher: | Taylor & Francis |
Identification Number: | 10.1080/21642850.2025.2463916 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:223355 |
Download
Filename: Qualitative Data Note_aspirin qualitative study_marked.pdf
Licence: CC-BY 4.0