Improving outcome measures in late onset Pompe disease: Modified Rasch-Built Pompe-Specific Activity scale

van Kooten, H.A., Horton, M.C., Wenninger, S. et al. (17 more authors) (2024) Improving outcome measures in late onset Pompe disease: Modified Rasch-Built Pompe-Specific Activity scale. European Journal of Neurology. e16397. ISSN 1351-5101

Abstract

Metadata

Item Type: Article
Authors/Creators:
  • van Kooten, H.A.
  • Horton, M.C.
  • Wenninger, S.
  • Babačić, H.
  • Schoser, B.
  • Lefeuvre, C.
  • Taouagh, N.
  • Laforêt, P.
  • Segovia, S.
  • Díaz‐Manera, J.
  • Claeys, K.G.
  • Mongini, T.
  • Musumeci, O.
  • Toscano, A.
  • Hundsberger, T.
  • Brusse, E.
  • van Doorn, P.A.
  • van der Ploeg, A.T.
  • van der Beek, N.A.M.E.
  • European Pompe Consortium study group on outcome measures
Copyright, Publisher and Additional Information:

© 2024 The Author(s). This is an open access article under the terms of the Creative Commons Attribution-NonCommercial License (CC-BY-NC 4.0).

Keywords: daily life activities, patient-reported outcome measure, Pompe disease, Rasch analysis
Dates:
  • Published (online): 28 August 2024
  • Accepted: 19 June 2024
Institution: The University of Leeds
Academic Units: The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Medicine (Leeds) > Institute of Rheumatology & Musculoskeletal Medicine (LIRMM) (Leeds) > Rehabilitation Medicine (Leeds)
Depositing User: Symplectic Publications
Date Deposited: 03 Oct 2024 10:24
Last Modified: 03 Oct 2024 10:24
Status: Published online
Publisher: Wiley
Identification Number: 10.1111/ene.16397
Related URLs:
Open Archives Initiative ID (OAI ID):

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