Adult North Star Network (ANSN): consensus guideline for the standard of care of adults with Duchenne muscular dystrophy

Quinlivan, R., Messer, B., Murphy, P. et al. (15 more authors) (2021) Adult North Star Network (ANSN): consensus guideline for the standard of care of adults with Duchenne muscular dystrophy. Journal of Neuromuscular Diseases, 8 (6). pp. 899-926. ISSN 2214-3599

Abstract

Metadata

Item Type: Article
Authors/Creators:
  • Quinlivan, R.
  • Messer, B.
  • Murphy, P.
  • Astin, R.
  • Mukherjee, R.
  • Khan, J.
  • Emmanuel, A.
  • Wong, S.C.
  • Kulshresha, R.
  • Willis, T.
  • Pattni, J.
  • Willis, D.
  • Morgan, A.
  • Savvatis, K.
  • Keen, R.
  • Bourke, J.
  • Marini Bettolo, C.
  • Hewamadduma, C.
Copyright, Publisher and Additional Information:

© 2021– The authors. Published by IOS Press. This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial License (CC BY-NC 4.0) https://creativecommons.org/licenses/by-nc/4.0/

Keywords: Duchenne Muscular Dystrophy; multi-disciplinary care; non-invasive ventilation; Adult; Consensus; Humans; Muscular Dystrophy, Duchenne; Standard of Care; Surveys and Questionnaires
Dates:
  • Published: 2 November 2021
  • Published (online): 2 November 2021
Institution: The University of Sheffield
Academic Units: The University of Sheffield > Sheffield Teaching Hospitals
Depositing User: Symplectic Sheffield
Date Deposited: 30 Sep 2024 15:31
Last Modified: 30 Sep 2024 15:31
Status: Published
Publisher: IOS Press
Refereed: Yes
Identification Number: 10.3233/jnd-200609
Related URLs:
Open Archives Initiative ID (OAI ID):

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