Mills, T.J., Price, E., Aggarwal, V.R. orcid.org/0000-0003-0838-9682 et al. (2 more authors) (2024) Oral health and dental care challenges in scleroderma - perspectives of dentists, rheumatologists, and patients. Rheumatology Advances in Practice, 8 (4). rkae121. ISSN 2514-1775
Abstract
Objectives
The oral health care challenges of people living with scleroderma (systemic sclerosis—SSc) are poorly understood, yet frequently reported. This mixed methods study aimed to investigate oral health and dental care challenges associated with SSc from the perspective of dentists, rheumatologists, and patients.
Methods
Dentists, rheumatologists, and SSc patients in the UK completed a survey about their experiences of oral health, dental care, and quality of life. People with SSc were also interviewed. We conducted descriptive analysis of quantitative data and used thematic analysis to examine qualitative data.
Quant Results
Quantitative: 95.5% of patients reported oral and dental manifestations of scleroderma (ODMS); 57.1% reported high physical impacts, 53.8% high psychological impacts, and 47.7% high social impacts. Only 13% of patients were informed of ODMS at diagnosis. No dentist or rheumatologist felt fully confident in managing ODMS. The most frequent suggestion for improvement among patients and dentists was increased information for dentists. Qualitative: We identified 3 key themes. 1) Significant negative impact on quality of life; 2) Barriers to accessing dental care; 3) Characteristics of good dental care.
Conclusion
ODMS are prevalent issues, constituting a significant burden on quality of life. Rheumatologists should inform SSc patients of ODMS and embed oral health inquiries into annual reviews. Communication between medical and dental practitioners should be encouraged to facilitate early identification and management of ODMS.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © The Author(s) 2024. This is an open access article under the terms of the Creative Commons Attribution License (CC-BY 4.0), which permits unrestricted use, distribution and reproduction in any medium, provided the original work is properly cited. |
Keywords: | Scleroderma, Systemic Sclerosis, Oral Health, Rheumatologists, Dentists, Quality of Life, Dental Care, United Kingdom |
Dates: |
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Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Dentistry (Leeds) > Oral Surgery (Leeds) |
Depositing User: | Symplectic Publications |
Date Deposited: | 18 Sep 2024 10:36 |
Last Modified: | 11 Dec 2024 15:53 |
Status: | Published online |
Publisher: | Oxford University Press |
Identification Number: | 10.1093/rap/rkae121 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:217345 |