Ejegi-Memeh, S. orcid.org/0000-0002-9241-300X, Sherborne, V., Mayland, C. orcid.org/0000-0002-1440-9953 et al. (2 more authors) (2024) Mental health and wellbeing in mesothelioma: a qualitative study exploring what helps the wellbeing of those living with this illness and their informal carers. European Journal of Oncology Nursing, 70. 102572. ISSN 1462-3889
Abstract
Purpose
Mesothelioma is an incurable, asbestos related cancer with a poor prognosis. Little is known about how patients and carers living with the condition manage their mental health and wellbeing needs. This paper reports findings on interventions being used by patients and informal carers living with mesothelioma and those which they find most helpful.
Methods
In-depth interviews with patients (n = 10) and (informal) carers (n = 11) living with mesothelioma in the UK. We analysed our data inductively using a reflexive thematic analysis approach.
Results
Participants described the importance of both smaller and larger actions and strategies which helped with their mental health. This included spending more time with family and friends and going on holidays. Professionals who participants said supported their mental health journey included not only specialist nurses and mental health professionals but also legal and Asbestos Support Group professionals. The latter demonstrates the unique needs and support required for this population. Exposure to asbestos as the cause of mesothelioma, has led to a social justice aspect of the experience of living with this cancer. Participants reported the importance of collective action to their mental health and wellbeing. The data indicate that patients and carers may have distinct mental health and wellbeing requirements and need to manage these in different ways at different times.
Conclusions
Findings have implications for nurses and other key professionals working in healthcare, community and legal settings supporting this client group, and for those living with mesothelioma who want to understand ways to enhance their own wellbeing.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2024 The Authors. Published by Elsevier Ltd. This is an open access article under the CC BY license (http://creativecommons.org/licenses/by/4.0/). |
Keywords: | Informal carers; Mental health interventions; Mesothelioma; Patients; Wellbeing; Humans; Male; Female; Middle Aged; Qualitative Research; Caregivers; Aged; Mesothelioma; Mental Health; United Kingdom; Quality of Life; Adult; Social Support; Adaptation, Psychological; Aged, 80 and over; Interviews as Topic |
Dates: |
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Institution: | The University of Sheffield |
Academic Units: | The University of Sheffield > Faculty of Medicine, Dentistry and Health (Sheffield) > Health Sciences School (Sheffield) The University of Sheffield > Faculty of Medicine, Dentistry and Health (Sheffield) > School of Medicine and Population Health The University of Sheffield > Faculty of Social Sciences (Sheffield) > Department of Sociological Studies (Sheffield) |
Funding Information: | Funder Grant number MESOTHELIOMA UK CHARITABLE TRUST UNSPECIFIED |
Depositing User: | Symplectic Sheffield |
Date Deposited: | 20 Jun 2024 15:53 |
Last Modified: | 20 Jun 2024 15:53 |
Status: | Published |
Publisher: | Elsevier BV |
Refereed: | Yes |
Identification Number: | 10.1016/j.ejon.2024.102572 |
Related URLs: | |
Sustainable Development Goals: | |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:213737 |