Munro, J., Hubbard, G., Goodman, W. orcid.org/0000-0002-8936-0787 et al. (2 more authors) (2024) Lived Experience of Parastomal Bulging: A Mixed Methods Study. Journal of Abdominal Wall Surgery, 3. 12478. ISSN 2813-2092
Abstract
Aim: This United Kingdom study aimed to explore people’s experiences of living with, and self-managing parastomal bulging.
Methods: Seventeen people were interviewed and 61 people completed an online survey.
Results: Parastomal bulging has a detrimental impact on quality of life including a negative impact on stoma function, daily activities, body image, physical intimacy, and socialising; access to specialist information and support for addressing the problem of bulging was inequitable; support garments were the most common self-management intervention; there was confusion about what exercise would be beneficial or how being active would help in terms of parastomal bulging self-management; peer support is no substitute for high quality specialist support.
Conclusion: People need equitable access to information and support to self-manage and treat parastomal bulging. Research about other types of self-management interventions, for example, exercise is required so that people do not have to rely solely on support garments to self-manage parastomal bulging.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2024 Munro, Hubbard, Goodman, Beeken and Oliphant. This is an open access article under the terms of the Creative Commons Attribution License (CC-BY 4.0), which permits unrestricted use, distribution and reproduction in any medium, provided the original work is properly cited. |
Keywords: | stoma, hernia, self-management, parastomal hernia, parastomal bulging |
Dates: |
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Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Medicine (Leeds) > Leeds Institute of Health Sciences (Leeds) > Academic Unit of Primary Care (Leeds) The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Medicine (Leeds) |
Funding Information: | Funder Grant number Bowel Disease Research Foundation dnu - merged with B&CR Not Known Bowel Disease Research Foundation dnu - merged with B&CR 1576gh |
Depositing User: | Symplectic Publications |
Date Deposited: | 21 Jun 2024 12:29 |
Last Modified: | 21 Jun 2024 12:29 |
Status: | Published |
Publisher: | Frontiers Media |
Identification Number: | 10.3389/jaws.2024.12478 |
Related URLs: | |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:213674 |
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Licence: CC-BY 4.0