Manni, Simona orcid.org/0000-0002-8015-8136, Phillips, Bob orcid.org/0000-0002-4938-9673, Hamzaki, Zulfiya et al. (2 more authors) (2024) Negotiating Neutrality: Designing a Responsive Video to Support Fertility Preservation Decision-making by Cancer-diagnosed Young Female Patients. In: Proceedings of the The ACM International Conference on Interactive Media Experiences 2024. ACM International Conference on Interactive Media Experiences 2024, 15-17 May 2024 ACM , SWE
Abstract
This paper explores how novel possibilities for personalisation and interactivity in video media, posed by developments in respon- sive video technology, can be applied to support patients as they make complex decisions about their health and care. We present the stakeholder-centred design of Exploring Your Options, a narrative- based responsive video developed to support young female patients in understanding and negotiating the fertility preservation options available to them following a cancer diagnosis. By reflecting on findings resulting from the process of designing and analysing Ex- ploring Your Options with the involvement of cancer-experienced young people, health professionals and related stakeholders, we reveal opportunities for designing health information videos lever- aging personalisation and interactivity to meet both informational and emotional support needs of patients, and highlight insights and considerations that can guide designers seeking to leverage these opportunities in ways that are sensitive and appropriate to the demands of complex healthcare contexts.
Metadata
Item Type: | Proceedings Paper |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | This is an author-produced version of the published paper. Uploaded in accordance with the University’s Research Publications and Open Access policy. |
Dates: |
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Institution: | The University of York |
Academic Units: | The University of York > Faculty of Sciences (York) > Health Sciences (York) The University of York > Faculty of Sciences (York) > Hull York Medical School (York) The University of York > Faculty of Social Sciences (York) > Centre for Reviews and Dissemination (York) The University of York > Faculty of Arts and Humanities (York) > Theatre, Film, TV and Interactive Media (York) |
Funding Information: | Funder Grant number EPSRC EP/X525856/1 EPSRC EP/M023265/1 |
Depositing User: | Pure (York) |
Date Deposited: | 29 Apr 2024 15:30 |
Last Modified: | 09 Jul 2025 23:29 |
Published Version: | https://doi.org/10.1145/3639701.3656304 |
Status: | Published |
Publisher: | ACM |
Identification Number: | 10.1145/3639701.3656304 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:212081 |
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