Rodriguez, A.M. orcid.org/0000-0001-9104-1999, Kellehear, A., Lanfranchi, V. orcid.org/0000-0003-3148-2535 et al. (5 more authors) (2025) The qualitative DIGNISPACE study: the co-design of a life review, meaning-making and legacy leaving digital intervention for young people with life-limiting conditions. Illness, Crisis & Loss, 33 (1). pp. 172-197. ISSN 1054-1373
Abstract
Background
Young people with life-limiting conditions have unmet psycho-spiritual needs. Dignity Therapy is a psycho-therapeutic end-of-life intervention that addresses life review, meaning making and legacy leaving. Studies of Dignity Therapy including young people are limited. Aim: To co-design a digital Dignity Therapy-based intervention for young people with life-limiting conditions (DIGNISPACE).
Design
A qualitative study including focus groups (n=5) with hospice-based healthcare professionals (n=23), semi-structured interviews with young people with life-limiting conditions (n=13) and family carers (n=12). Data were analyzed using framework analysis.
Results
Three main themes were derived; intervention purpose, amendments to the Dignity Therapy question protocol and content for a digital application. Findings influenced the development of DIGNISPACE and a model of dignity in young people with life-limiting conditions.
Conclusions
DIGNISPACE addresses the psycho-spiritual needs of young people with life-limiting conditions, including tenets of the model of dignity in young people with life-limiting conditions in its content and delivery.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2023 The Author(s). This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is properly attributed. |
Keywords: | life-limiting conditions; young people; Dignity; qualitative; digital intervention |
Dates: |
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Institution: | The University of Sheffield |
Academic Units: | The University of Sheffield > Faculty of Engineering (Sheffield) > Department of Computer Science (Sheffield) |
Funding Information: | Funder Grant number SHEFFIELD TEACHING HOSPITALS NHS FOUNDATION TRUST STH21030 |
Depositing User: | Symplectic Sheffield |
Date Deposited: | 31 Jan 2024 15:54 |
Last Modified: | 11 Nov 2024 14:05 |
Status: | Published |
Publisher: | SAGE Publications |
Refereed: | Yes |
Identification Number: | 10.1177/10541373231202842 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:208558 |