Walk a mile in my shoes: perspectives towards sharing of health and experience data among individuals living with sickle cell disorder

Leigh, S., Baines, R., Stevens, S. et al. (3 more authors) (2024) Walk a mile in my shoes: perspectives towards sharing of health and experience data among individuals living with sickle cell disorder. mHealth, 10. 4. ISSN 2306-9740

Abstract

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Item Type: Article
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© mHealth. This is an Open Access article distributed in accordance with the Creative Commons Attribution-NonCommercial-NoDerivs 4.0 International License (CC BY-NC-ND 4.0), which permits the noncommercial replication and distribution of the article with the strict proviso that no changes or edits are made and the original work is properly cited (including links to both the formal publication through the relevant DOI and the license). See: https://creativecommons.org/licenses/by-nc-nd/4.0/.

Keywords: Data sharing; digital health technologies (DHTs); personal health data; sickle cell disorder (SCD); rare disorders
Dates:
  • Published: 30 January 2024
  • Published (online): 8 January 2024
  • Accepted: 29 November 2023
Institution: The University of Leeds
Academic Units: The University of Leeds > Central Admin & Support Services (CASS) > Central Offices
Depositing User: Symplectic Publications
Date Deposited: 17 Jan 2024 09:52
Last Modified: 17 Jan 2024 09:55
Published Version: https://mhealth.amegroups.org/article/view/120630/...
Status: Published
Publisher: AME Publishing Company
Identification Number: 10.21037/mhealth-23-18
Open Archives Initiative ID (OAI ID):

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