Peat, George orcid.org/0000-0002-0293-2456, Delaney, Sally-Ann, Gibson, Faith et al. (2 more authors) (2023) Shared decision-making experiences in child long-term ventilation:a systematic review. European respiratory review : an official journal of the European Respiratory Society. 230098. ISSN 1600-0617
Abstract
INTRODUCTION: Recent decades have seen an increase in children receiving long-term ventilation. To ensure that long-term ventilation decisions incorporate the perspectives of stakeholders, it is vital that empirical evidence is gathered to substantiate frameworks and guidance on shared decision-making for long-term ventilation. This systematic review and qualitative evidence synthesis aimed to clarify what shared decision-making constitutes in relation to long-term ventilation initiation for children and young people (<21 years). METHODS: A systematic review of qualitative research was undertaken. Searches were conducted in MEDLINE, Embase, CINAHL, PsycINFO and Web of Science. RESULTS: Findings from 13 studies were included representative of 363 caregivers and 143 healthcare professional experiences. Components that support shared decision-making included acknowledging the unique positionality of caregivers and ensuring caregivers were informed about the implications of long-term ventilation. Beneficial qualities of engagement between stakeholders included honest, clear and timely dialogue using lay, tactful and sensitive language. CONCLUSION: Our findings clarify components and approaches supportive of shared decision-making in discussions about long-term ventilation. This review therefore provides a valuable resource to implement shared decision-making practices in the context of long-term ventilation decisions for children and young people.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © The authors 2023. |
Keywords: | Child,Humans,Adolescent,Respiration,Health Personnel |
Dates: |
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Institution: | The University of York |
Academic Units: | The University of York > Faculty of Sciences (York) > Health Sciences (York) |
Depositing User: | Pure (York) |
Date Deposited: | 01 Sep 2023 07:50 |
Last Modified: | 08 Feb 2025 00:51 |
Published Version: | https://doi.org/10.1183/16000617.0098-2023 |
Status: | Published |
Refereed: | Yes |
Identification Number: | 10.1183/16000617.0098-2023 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:202918 |
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Filename: 230098.full.pdf
Description: Shared decision-making experiences in child long-term ventilation: a systematic review
Licence: CC-BY-NC 2.5