Bozovic Spasojevic, I. orcid.org/0000-0003-0678-9850, Ferrari, A. orcid.org/0000-0002-4724-0517, De Munter, J. et al. (12 more authors) (2023) Have we made progress in taking care of adolescents and young adults with cancer? Results of a European multi-professional survey. Tumori Journal, 109 (6). 546 -554. ISSN 0300-8916
Abstract
Background: It is well documented that traditional health care models do not meet the specific needs of Adolescents and Young Adults (AYA) cancer patients. Methods: We explore a map of the development of age-specific AYA cancer care across Europe, from the perspective of healthcare professionals with an interest in AYA care, in order to understand the specific challenges and map progress over time. An on-line survey was developed by international professional cancer organisations. Results: We had 377 respondents from 60 countries. The majority of respondents were physicians 298 (79%), a minority of survey respondents (39, 10.4%) work exclusively with AYA patients, most respondents declared substantial and routine clinical service collaborations to provide care and treatment to AYA with cancer. Policy for the multidisciplinary management of AYA cancer patients commonly appears in Europe now, and was reported by 234 (78.52%) respondents. Specific professional training for AYA cancer care is not uniformly available. Conclusion: There is considerable opportunity for many organisations to work together in raising the profile of AYA cancer related issues, in providing education and in encouraging research and collaboration.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Keywords: | Adolescents and young adults; cancer; survey |
Dates: |
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Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Medicine (Leeds) > Leeds Institute of Medical Research (LIMR) > Division of Oncology |
Funding Information: | Funder Grant number NIHR National Inst Health Research NIHR300693 ESRC (Economic and Social Research Council) ES/S00565X/1 Children's Cancer & Leukaemia Group TYAC 2022 02 Hughes |
Depositing User: | Symplectic Publications |
Date Deposited: | 10 Aug 2023 09:36 |
Last Modified: | 19 Nov 2024 10:37 |
Status: | Published |
Publisher: | SAGE Publications |
Identification Number: | 10.1177/03008916231183477 |
Related URLs: | |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:202312 |