Engagement with a local African-Caribbean community to explore perspectives and research priorities among Black men for prostate cancer using a co-participatory approach

Background Prostate cancer (PCa) is the most common cancer in the UK, with 1 in 8 affected in their lifetime. However, there are significant race disparities that Black men are more negatively impacted than any other races with their increased risks and worse outcomes. However, they are under-represented in research, and often labelled as ‘hard to reach’ population.

Aim The aim of this study was to reach out to a local Black male community using a co-participatory approach, to build up trust and explore their understandings and concerns of the disease.

Method We recruited 2 community researchers (CRs) from SACMHA (Sheffield African-Caribbean Mental Health Association). Using a co-participatory approach, we worked together throughout the project, including recruitment, planning and facilitating workshops, analysing and presenting data. Two workshops were organised. We introduced an overview of PCa followed by open discussion in several small groups. A rapid qualitative analysis was used to identify key points.

Results The engagement was fantastic. We recruited over 30 participants from the Black male community for the first workshop within 4 weeks. A range of topics were raised which were summarised as a Black men’s journey of PCa. The participants were very keen to receive information and have their voice heard. These are facilitating factors in engagement. The males showed concern about their lack of awareness of their high risks of PCa. Personal experiences have also been emphasised throughout the disease journey.

Conclusion Using a co-participatory approach in community research engagement was successful. We shared our knowledge, built trust, and identified research priorities.