Hobson, Hannah orcid.org/0000-0002-7952-475X, Linden, Audrey, Crane, Laura et al. (1 more author) (2023) Towards reproducible and respectful autism research:Combining open and participatory autism research practices. Research in Autism Spectrum Disorders. ISSN 1750-9467
Abstract
Background Open research broadly refers to a set of practices that aim to increase transparency, rigor, reproducibility and inclusivity of research. Participatory research refers to incorporating the views and sharing power with the autism community to decide what research gets done, how it is done and how it is implemented. There is growing interest in both open and participatory practices in autism research. To date, however, these practices have tended to be considered separately. Method In this paper, we outline the value of both open and participatory approaches to the autism research field, highlighting key points of overlap. Results We propose three core principles underpinning open and participatory autism research: (1) the need for adequate expertise and infrastructure to facilitate high quality research, (2) the need for a greater degree of accessibility at all stages of the research process, and (3) the need to foster trusting relationships between the autistic and research communities. Conclusion There are various challenges and opportunities of adopting open and participatory principles in autism research. We hope our principles support researchers to embed these approaches more fully within their work.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2023 The Authors. |
Keywords: | Autism,Open science,Open research,Participatory research,C0-production |
Dates: |
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Institution: | The University of York |
Academic Units: | The University of York > Faculty of Sciences (York) > Psychology (York) |
Depositing User: | Pure (York) |
Date Deposited: | 26 Jul 2023 10:10 |
Last Modified: | 21 Jan 2025 18:09 |
Published Version: | https://doi.org/10.1016/j.rasd.2023.102196 |
Status: | Published online |
Refereed: | Yes |
Identification Number: | 10.1016/j.rasd.2023.102196 |
Related URLs: | |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:201911 |