Jones, K.L. orcid.org/0009-0002-5166-6462, Sejersen, T., Amato, A.A. et al. (5 more authors) (2016) A protocol to develop clinical guidelines for inclusion‐body myositis. Muscle & Nerve, 53 (4). pp. 503-507. ISSN 0148-639X
Abstract
Introduction Inclusion-body myositis (IBM) is a late-onset idiopathic inflammatory myopathy associated with selective and progressive muscle weakness and atrophy. Current clinical management of IBM is largely supportive due to its uncertain etiology and lack of effective treatment. Establishing a consensus of opinion on questions relating to diagnosis and management of IBM is expected to help reduce inconsistencies in the care and resources allocated to those living with this condition.
Methods A protocol has been developed to produce best practice clinical guidelines for IBM based on a combination of published research and expert consensus.
Conclusions In this study we describe the proposed protocol for developing methods for producing robust and transparent clinical guidance on aspects of diagnosis, drug treatment, physical and practical management, respiration, nutrition and cardiac management, psychosocial management, and multidisciplinary care.
Metadata
Item Type: | Article |
---|---|
Authors/Creators: |
|
Copyright, Publisher and Additional Information: | © 2016 The Authors. Muscle & Nerve Published by Wiley Periodicals, Inc. This is an open access article under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs License, (http://creativecommons.org/licenses/by-nc-nd/4.0/) which permits use and distribution in any medium, provided the original work is properly cited, the use is non-commercial and no modifications or adaptations are made. |
Keywords: | IBM; diagnosis; guidelines; management; protocol; Clinical Trials as Topic; Humans; Myositis; Myositis, Inclusion Body; Practice Guidelines as Topic |
Dates: |
|
Institution: | The University of Sheffield |
Academic Units: | The University of Sheffield > Faculty of Medicine, Dentistry and Health (Sheffield) > School of Health and Related Research (Sheffield) > ScHARR - Sheffield Centre for Health and Related Research |
Depositing User: | Symplectic Sheffield |
Date Deposited: | 28 Jun 2023 16:18 |
Last Modified: | 28 Jun 2023 16:18 |
Status: | Published |
Publisher: | Wiley |
Refereed: | Yes |
Identification Number: | 10.1002/mus.25036 |
Related URLs: | |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:201034 |
Download
Licence: CC-BY-NC-ND 4.0