Marquis, S., O'Leary, R., Hayden, N.K. orcid.org/0000-0003-1104-3885 et al. (1 more author) (2023) A realist review of programs for siblings of children who have an intellectual/developmental disability. Family Relations, 72 (4). pp. 2083-2102. ISSN 0197-6664
Abstract
Objective Our purpose is to answer the following question: What mechanisms or components of programs, groups, or interventions improve psychological and social aspects of the lives of siblings of children who have intellectual/developmental disabilities (IDD)? Secondly, using a realist review format, we develop program theories and recommendations that can guide current and future sibling support programs.
Background There is evidence that having a sibling with IDD can affect the physical health, behavior, and mental health of siblings who do not have IDD. As a result, support programs have been developed for these nondisabled siblings.
Methods We conducted a realist review of 31 studies assessing support programs for siblings of children with IDD. Gray literature was also included. Applying the realist paradigm, we identified program contexts, mechanisms that promote program effectiveness, and the outcomes of the programs.
Results We found that contextual information was often lacking in the research and no studies examined the effectiveness of individual program components. However, the mechanisms of validation of feelings and experiences, time with parents, and respite were observed as beneficial for the siblings. From our analysis and using a realist review paradigm, we developed four program theories that reflect the siblings' experiences in the various programs.
Conclusion The four program theories derived from this realist review can be summarized as “I am not the only one,” “I have needs too,” “I need my parents' attention,” and “I need a break.”
Implications Based upon the four theories, we offer recommendations to guide program development.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2022 National Council on Family Relations. This is an author-produced version of a paper subsequently published in Family Relations. Uploaded in accordance with the publisher's self-archiving policy. |
Keywords: | developmental disability; intellectual disability; sibling; support program |
Dates: |
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Institution: | The University of Sheffield |
Academic Units: | The University of Sheffield > Faculty of Social Sciences (Sheffield) > Research Institutes Faculty of Social Sciences (Sheffield) |
Depositing User: | Symplectic Sheffield |
Date Deposited: | 13 Mar 2023 16:32 |
Last Modified: | 25 Sep 2024 15:39 |
Status: | Published |
Publisher: | Wiley |
Refereed: | Yes |
Identification Number: | 10.1111/fare.12789 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:197235 |