Berghs, M and Ebenso, B orcid.org/0000-0003-4147-0968 (2023) Social Science Research and Sickle Cell Disorders. In: Liamputtong, P, (ed.) Handbook of Social Sciences and Global Public Health. Springer Cham ISBN 978-3-030-96778-9
Abstract
Social science research on sickle cell disorders (SCD), recessively inherited blood conditions, have come of age in the last twenty years from being invisible, neglected, racialized, and mainly medical in focus, to one that is now a global social science priority. In this chapter, an overview is given of sickle cell disorders and the sickle cell trait and why they are important to social science research. It is noted how social science research has had to engage in decolonization of research to uncover and make visible an invisible history as well as to assess policy decisions, like screening, in the present. Theoretical developments are presented but it is noted that social science research on SCD even in theory always has to deal with issues of “race” even in future developments.
Metadata
Item Type: | Book Section |
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Authors/Creators: |
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Editors: |
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Keywords: | Inequalities; Racism; Sickle cell; Sickle cell trait; Social sciences |
Dates: |
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Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Medicine (Leeds) > Leeds Institute of Health Sciences (Leeds) > Nuffield Centre for International Health and Development (Leeds) |
Depositing User: | Symplectic Publications |
Date Deposited: | 15 Feb 2023 09:21 |
Last Modified: | 12 Apr 2023 14:07 |
Published Version: | https://link.springer.com/referencework/10.1007/97... |
Status: | Published |
Publisher: | Springer Cham |
Identification Number: | 10.1007/978-3-030-96778-9_91-1 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:196322 |