Sandler, R.D. orcid.org/0000-0002-6933-9921 and Wildman, M.J. (2023) The CFHealthHub learning health system: using real-time adherence data to support a community of practice to deliver continuous improvement in an archetypal long-term condition. Healthcare, 11 (1). 20. ISSN 2227-9032
Abstract
CFHealthHub is a learning health system active in over 50% of adult CF Centres in England, supporting people with CF to develop habits of self-care around adherence to preventative inhaled therapy. This is achieved through the delivery of a behaviour change intervention, alongside collection of objective adherence data. As is common to long-term conditions, adherence to prescribed therapy is low, despite clear evidence of beneficial long-term impact on outcomes. This article explains how CFHealthHub is underpinned by coherent conceptual frameworks. We discuss how application of implementation and quality improvement strategies has facilitated CFHealthHub’s progression from a pilot study to a large, randomised control trial and now to a learning health system, becoming embedded within routine care. CFHealthHub is now able to support real-time health technology assessments, quality improvement and research trials and is in the process of being implemented in routine clinical care across participating centres.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2022 by the authors. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). |
Keywords: | adherence; behaviour change; cystic fibrosis; compliance; digital health interventions; habit formation; long-term conditions; quality improvement; self-care; trials within cohorts |
Dates: |
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Institution: | The University of Sheffield |
Academic Units: | The University of Sheffield > Faculty of Medicine, Dentistry and Health (Sheffield) > School of Health and Related Research (Sheffield) > ScHARR - Sheffield Centre for Health and Related Research |
Depositing User: | Symplectic Sheffield |
Date Deposited: | 11 Jan 2023 16:20 |
Last Modified: | 11 Jan 2023 16:20 |
Published Version: | http://dx.doi.org/10.3390/healthcare11010020 |
Status: | Published |
Publisher: | MDPI AG |
Refereed: | Yes |
Identification Number: | 10.3390/healthcare11010020 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:195106 |