Spencer, BKC, Wright, J orcid.org/0000-0002-5239-0173, Flemming, K et al. (2 more authors) (2023) School lives of adolescent school students living with chronic physical health conditions: a qualitative evidence synthesis. Archives of Disease in Childhood, 108. pp. 225-229. ISSN 0003-9888
Abstract
Objective Assess the existing evidence base in order to synthesise the current qualitative findings for the impact of chronic health conditions on the school lives of young people.
Design Qualitative evidence synthesis using thematic synthesis.
Patients Young people aged 11–18 years with a chronic health condition from one of the following groups: oncology, cystic fibrosis, diabetes, asthma, rheumatology, neuromuscular, colorectal, chronic pain, allergies and dermatology.
Outcome measure Qualitative findings and discussions present in included studies formed the data for the thematic synthesis.
Results From a search identifying 19 311 records, a sample of 35 papers were included. The included papers represented 15 countries and primarily employed interviews as part of data collection. Thematic synthesis resulted in six themes: ‘keeping up/catching up/missing out/looking forward’; ‘identity’; ‘relationship with peers’; ‘normality and difference’; ‘autonomy’; ‘relationships with staff’.
Conclusions Thematic synthesis highlighted the commonalities, rather than divergence, of issues for young people across different chronic conditions. Policies need to be based on the experiences of the people they aim to provide for, and while attendance and attainment remain important, there is clearly more that needs to be considered when gathering data, designing interventions and developing policies to support this population. It may also be advisable for clinical professionals to include the broader psychosocial aspects of school life in discussions and plans to support young people with long-term conditions.
PROSPERO registration number CRD42021278153.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © Author(s) (or their employer(s)) 2022. Re-use permitted under CC BY. Published by BMJ. This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited, a link to the licence is given, and indication of whether changes were made. See: https://creativecommons.org/licenses/by/4.0/. |
Keywords: | adolescent health; qualitative research |
Dates: |
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Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Medicine (Leeds) > Leeds Institute of Health Sciences (Leeds) > Academic Unit of Health Economics (Leeds) The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Medicine (Leeds) > Leeds Institute of Health Sciences (Leeds) > Academic Unit of Psychiatry and Behavioural Sciences (Leeds) |
Funding Information: | Funder Grant number NIHR National Inst Health Research NIHR300842 |
Depositing User: | Symplectic Publications |
Date Deposited: | 19 Dec 2022 12:07 |
Last Modified: | 27 Jun 2023 12:44 |
Status: | Published |
Publisher: | BMJ Publishing Group |
Identification Number: | 10.1136/archdischild-2022-324874 |
Related URLs: | |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:194108 |
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