Henrick, V, Marks, S, Balmer, R et al. (1 more author) (2022) Public and dental professionals' use of social media to discuss amelogenesis imperfecta. International Journal of Paediatric Dentistry, 32 (6). pp. 903-914. ISSN 0960-7439
Abstract
Background
Amelogenesis imperfecta (AI) is an inherited disorder of enamel development that is challenging to treat and often associated with negative patient and parental outcomes. Social media provides a valuable perspective on patients' and dental professionals' experience of AI and dental care.
Aim
To explore how the public and dental professionals use social media to discuss AI.
Design
A cross-sectional study involving a systemic search of eight social media platforms using the search term ‘amelogenesis imperfecta’. Relevant posts were selected using predefined eligibility criteria. Word content of eligible posts was qualitatively analysed using a thematic framework approach.
Results
A total of 555 posts were identified, of which 144 were eligible for analysis. For dental professionals, the posts included case reports and seeking and sharing of information. For the public, the posts were related to individuals' experience of AI, dental treatment and outcome of treatment.
Conclusions
Posts from individuals affected by AI suggest a need for better distribution of reliable information and greater support. Case reports indicate that dental professionals find it challenging to recognise AI and determine appropriate treatment options. Social media could potentially be used to inform and support people with AI and allow dental professionals to share information and learning with peers.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2022 The Authors. International Journal of Paediatric Dentistry published by BSPD, IAPD and John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. |
Keywords: | amelogenesis imperfecta, dentistry in social media, experience, quality of life, social media |
Dates: |
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Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Dentistry (Leeds) > Orthodontics (Leeds) |
Depositing User: | Symplectic Publications |
Date Deposited: | 06 Oct 2022 10:13 |
Last Modified: | 25 Jun 2023 23:07 |
Status: | Published |
Publisher: | Wiley |
Identification Number: | 10.1111/ipd.13015 |
Related URLs: | |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:191650 |