Leroi, I., Chaudhry, N., Daniel, A. et al. (25 more authors) (2019) A roadmap to develop dementia research capacity and capability in Pakistan: a model for low‐ and middle‐income countries. Alzheimer's & Dementia: Translational Research & Clinical Interventions, 5 (1). pp. 939-952. ISSN 2352-8737
Abstract
Objective
To produce a strategic roadmap for supporting the development of dementia research in Pakistan.
Background
While global research strategies for dementia research already exist, none is tailored to the specific needs and challenges of low- and middle-income countries (LMIC) like Pakistan.
Methods
We undertook an iterative consensus process with lay and professional experts to develop a Theory of Change-based strategy for dementia research in Pakistan. This included Expert Reference Groups (ERGs), strategic planning techniques, a “research question” priority survey, and consultations with Key Opinion Leaders.
Results
We agreed on ten principles to guide dementia research in Pakistan, emphasizing pragmatic, resource sparing, real-world approaches to support people with dementia, both locally and internationally. Goals included capacity/capability building. Priority research topics included raising awareness and understanding of dementia, and improving quality of life.
Conclusion
This roadmap may be a model for other LMIC health ecosystems with emerging dementia research cultures.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2019 The Authors. This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/). |
Keywords: | Dementia; Lower and middle-income country (LMIC); Research roadmap; Pakistan; South Asia; Capacity and capability building; Older adult; Mental health; Alzheimer disease; Research question prioritization |
Dates: |
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Institution: | The University of Sheffield |
Academic Units: | The University of Sheffield > Faculty of Science (Sheffield) > Department of Psychology (Sheffield) |
Depositing User: | Symplectic Sheffield |
Date Deposited: | 14 Mar 2022 15:58 |
Last Modified: | 14 Mar 2022 15:59 |
Status: | Published |
Publisher: | Wiley |
Refereed: | Yes |
Identification Number: | 10.1016/j.trci.2019.11.005 |
Related URLs: | |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:184672 |