Supporting carers of people with a progressive neurological condition

Abstract

Unpaid carers provide round the clock support to people living with a condition that affects the brain and gets worse over time (progressive neurological condition). Caregiving can be rewarding, but can also affect carer health and wellbeing. Carers consistently report many unmet support needs. We believe that carers, academics, service providers, and policymakers need to work together to improve support for carers and offer five pillars of action.

Metadata

Item Type:	Monograph
Authors/Creators:	Boele, F https://orcid.org/0000-0003-0409-7949 Nicklin, E https://orcid.org/0000-0002-6683-8098 Bronsdon, S Brooke Mawson, I Buckle, P Cartwright, S Hulme, C https://orcid.org/0000-0003-2077-0419 McInerney, L Palmer, Y Foy, R https://orcid.org/0000-0003-0605-7713 Jopson, J O’Connor, RJ https://orcid.org/0000-0002-4643-9794 Rebane, A https://orcid.org/0009-0009-2475-3430 Wright, J https://orcid.org/0000-0002-5239-0173
Copyright, Publisher and Additional Information:	© The Authors 2022. DOI: https://doi.org/10.48785/100/87. Licensed under Creative Commons (CC-BY 4.0), except front page image © Shutterstock, rights reserved.
Dates:	Published: 11 January 2022
Institution:	The University of Leeds
Academic Units:	The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Medicine (Leeds) > Institute of Rheumatology & Musculoskeletal Medicine (LIRMM) (Leeds) > Rehabilitation Medicine (Leeds)
Depositing User:	Symplectic Publications
Date Deposited:	11 Jan 2022 12:33
Last Modified:	14 Feb 2025 13:06
Status:	Published
Publisher:	University of Leeds
Identification Number:	10.48785/100/87
Related URLs:	Publisher
Open Archives Initiative ID (OAI ID):	oai:eprints.whiterose.ac.uk:182415

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Supporting carers of people with a progressive neurological condition

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