Hicks, Ben, Read, Sanna, Hu, Bo et al. (25 more authors) (2022) A cohort study of the impact of COVID-19 on the quality of life of people newly diagnosed with dementia and their family carers. Alzheimer's and Dementia: Translational Research & Clinical Interventions. e12236. ISSN 2352-8737
Abstract
INTRODUCTION: COVID-19 has impacted people with dementia and their family carers, yet little is known about effects on overall quality of life. METHODS: In a UK cohort study, pre- and post-pandemic data were collected from 114 carers and 93 recently diagnosed people with dementia. Latent growth curve modeling examined change in quality of life. RESULTS: Carers reported significant decline in quality of life, although no change was demonstrated by people with dementia. In multivariable analyses, higher levels of cognitive impairment, deprivation, study site, and lower number of memory clinic contacts were associated with greater decline in carer quality of life. DISCUSSION: Maintaining life quality for people with dementia during the pandemic appears to have come at the expense of their family carers. This inequity has fallen hardest on those caring for people with more severe dementia, in deprived areas, and with least support from memory services. These effects may be prevented or reversed by post-diagnostic care.
Metadata
Item Type: | Article |
---|---|
Authors/Creators: |
|
Copyright, Publisher and Additional Information: | © 2022 The Authors. |
Dates: |
|
Institution: | The University of York |
Academic Units: | The University of York > Research Groups (York) > Social Policy Research Unit (York) The University of York > Faculty of Social Sciences (York) > Social Policy and Social Work (York) |
Funding Information: | Funder Grant number ECONOMIC AND SOCIAL RESEARCH COUNCIL (ESRC) ES/S010351/1 |
Depositing User: | Pure (York) |
Date Deposited: | 04 Jan 2022 16:10 |
Last Modified: | 06 Apr 2025 22:39 |
Published Version: | https://doi.org/10.1002/trc2.12236 |
Status: | Published |
Refereed: | Yes |
Identification Number: | 10.1002/trc2.12236 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:182014 |
Download
Description: A D Transl Res Clin Interv - 2022 - Hicks - A cohort study of the impact of COVID‐19 on the quality of life of people
Licence: CC-BY 2.5