Winterbottom, A orcid.org/0000-0002-1206-9430, Stoves, J, Ahmed, S orcid.org/0000-0003-4212-0388 et al. (2 more authors) (Cover date: March 2023) Patient information about living donor kidney transplantation across UK renal units: A critical review. Journal of Renal Care, 49 (1). pp. 45-55. ISSN 1755-6678
Abstract
Background
Patient information about living donor kidney transplantation is used to supplement conversations between health professionals, people with advanced kidney disease and potential kidney donors. It is not known if the information is designed to support decision-making about renal replacement options and if it helps people discuss living kidney donation with family and friends.
Objective
Critical review of resources used in outpatient kidney consultations to support patients' decision-making about living kidney donor transplantation.
Design
Mixed methods including an audit questionnaire and critical analysis of patient information leaflets.
Participants and measurements
All kidney transplant centres and renal units in United Kingdom received a questionnaire to elicit by whom, how, and when information about living kidney donation is delivered. Copies of leaflets were requested. A coding frame was utilised to produce a quality score for each leaflet.
Results
Thirty-nine (54%) units participated. Patients discussed living donor kidney transplantation with nephrologists (100%), living donor nurse (94%), transplant co-ordinator (94%), and predialysis nurse (86%). Twenty-three leaflets were provided and reviewed, mean quality scores for inclusion of information known to support shared decision-making was m = 2.82 out of 10 (range = 0–6, SD = 1.53). Readability scores indicated they were ‘fairly difficult to read’ (M = 56.3, range = 0–100, SD = 9.4). Few included cultural and faith information. Two leaflets were designed to facilitate conversations with others about donation.
Conclusions
Leaflets are unlikely to adequately support decision-making between options and discussions about donation. Services writing and updating patient leaflets may benefit from our six principles to guide their development.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2021 European Dialysis and Transplant Nurses Association/European Renal Care Association. This is the peer reviewed version of the following article:Winterbottom, A., Stoves, J., Ahmed, S., Ahmed, A. & Daga, S. (2021) Patient information about living donor kidney transplantation across UK renal units: A critical review. Journal of Renal Care, 1– 11. , which has been published in final form at https://doi.org/10.1111/jorc.12404. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions. |
Dates: |
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Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Medicine and Health (Leeds) > School of Medicine (Leeds) > Leeds Institute of Health Sciences (Leeds) > Academic Unit of Psychiatry and Behavioural Sciences (Leeds) |
Depositing User: | Symplectic Publications |
Date Deposited: | 24 Nov 2021 13:46 |
Last Modified: | 29 Oct 2024 14:02 |
Status: | Published |
Publisher: | Wiley |
Identification Number: | 10.1111/jorc.12404 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:180597 |