Garland, F, Thomson, M, Travis, M orcid.org/0000-0001-6245-7354 et al. (1 more author) (2021) Management of ‘disorders of sex development’/intersex variations in children: Results from a freedom of information exercise. Medical Law International, 21 (2). pp. 116-146. ISSN 0968-5332
Abstract
Non-therapeutic medical interventions on the bodies of children born with disorders of sex development (DSD)/intersex variations have been subject to increasing critical scrutiny. In response to recent criticism directed at the United Kingdom, and early moves to consider reform, we report on a freedom of information exercise that sought to evaluate whether National Health Service England is meeting international standards on optimal clinical management of DSD/intersex variations. The study explored what medical protocols are being followed to help inform potential reform, particularly with regard to non-therapeutic surgery. While the exercise revealed limited examples of promising practice, current protocols in the majority of Trusts appear unlikely to meet the complex needs of these children. We identify areas where significant improvement is needed, including data management, consistency in guideline use, composition of multidisciplinary teams and addressing disciplinary hierarchies within teams. These concerns sharpen criticisms of the lack of recognition of children’s rights in this context.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © The Author(s) 2021. This is an open access article under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) |
Keywords: | Intersex, disorders of sex development, bodily integrity, children’s rights, freedom of information |
Dates: |
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Institution: | The University of Leeds |
Academic Units: | The University of Leeds > Faculty of Education, Social Sciences and Law (Leeds) > School of Law (Leeds) |
Depositing User: | Symplectic Publications |
Date Deposited: | 22 Jun 2021 14:04 |
Last Modified: | 22 Jun 2021 14:04 |
Status: | Published |
Publisher: | SAGE Publications |
Identification Number: | 10.1177/09685332211003636 |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:175385 |
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Filename: Management of DSD Intersex Variations in Children - Results from a FOI exercise.pdf
Licence: CC-BY-NC 4.0