Mitchell, S., Oliver, P., Gardiner, C. et al. (6 more authors) (2021) Community end-of-life care during COVID-19 : findings of a UK primary care survey. BJGP Open, 5 (4). BJGPO.2021.0095. ISSN 2398-3795
Abstract
Background: Thousands of people in the UK have required end-of-life care in the community during the COVID-19 pandemic. Primary healthcare teams (general practice and community nursing services) have provided the majority of this care, alongside specialist colleagues. There is a need to learn from this experience in order to inform future service delivery and planning.
Aim: To understand the views of general practitioners and community nurses providing end-of-life care during the first wave of the COVID-19 pandemic.
Design & setting: A web-based, UK-wide questionnaire survey circulated via professional general practice and community nursing networks during September and October 2020.
Method: Responses were analysed using descriptive statistics and an inductive thematic analysis.
Results: Valid responses were received from 559 individuals (387 community nurses, 156 General Practitioners (GPs) and 16 unspecified role), from all regions of the UK. The majority reported increased involvement in providing community end-of-life care. Contrasting and potentially conflicting roles emerged between GPs and community nurses. There was increased use of remote consultations, particularly by GPs. Community nurses took greater responsibility in most aspects of end-of-life care practice, particularly face-to-face care, but reported feeling isolated. For some GPs and community nurses, there has been considerable emotional distress.
Conclusion: Primary healthcare services are playing a critical role in meeting increased need for end-of-life care in the community during the COVID-19 pandemic. They have adapted rapidly, but the significant emotional impact, especially for community nurses, needs addressing alongside rebuilding trusting and supportive team dynamics.
Metadata
Item Type: | Article |
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Authors/Creators: |
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Copyright, Publisher and Additional Information: | © 2021 The Author(s). This is an Open Access article distributed under the terms of the Creative Commons Attribution 4.0 License (http://creativecommons.org/licenses/by/4.0/). |
Keywords: | COVID-19; Primary health care; district nursing; end-of-life care; general practice; palliative care |
Dates: |
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Institution: | The University of Sheffield |
Academic Units: | The University of Sheffield > Faculty of Medicine, Dentistry and Health (Sheffield) |
Funding Information: | Funder Grant number Royal College of General Practitioners SFB Annual Grant ¿ SFB 2020-11 |
Depositing User: | Symplectic Sheffield |
Date Deposited: | 29 Jun 2021 12:53 |
Last Modified: | 21 Feb 2022 14:35 |
Status: | Published |
Publisher: | Royal College of General Practitioners |
Refereed: | Yes |
Identification Number: | 10.3399/bjgpo.2021.0095 |
Related URLs: | |
Open Archives Initiative ID (OAI ID): | oai:eprints.whiterose.ac.uk:175274 |